1. < Prostate Cancer

Life after prostate cancer

Posted by tuckerp @tuckerp, May 9 6:13pm

I am new on here. Age 72. I had RARP in Jan 2020. surgery/biopsy revealed 1 out 12 samples with cancer. Gleason 3+3. Margins were clean. I elected to remove it. I had a one week catheter removal and a one month checkup. I am very active also use heavy weight training. All PSA tests have been < .1. Pet scan in 2022 was negative. I am not continent and I am impotent. Testosterone level is 705. I turned to Mayo clinic for a followup in 2023. I have not seen my initial Dr. Mayo suggested an AUS. Also prescribed cialis. Since I removed the catheter I wear a condom catheter during the day. At night with 4 bathroom trips I can sleep without wearing anything. I am married but my wife has terminal cancer. (4 yrs). I have no opportunity for an erection. I do have a partial during the night. I have not tried the cialis . My question would be where do I go from here. Any suggestions. I did not ask for any help when I did the surgery and maybe that was not a good idea.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

robertmizek | @robertmizek | May 9 10:25pm
In reply to @tuckerp "I believe my Mayo surgeon is one of the best. I put the operation on hold...." + (show)
@tuckerp

I believe my Mayo surgeon is one of the best. I put the operation on hold. I can not afford any down time. Concerns I have are how reliable is the equipment? Might I need additional surgeries? How comfortable is it to use? My testing revealed a hyperactive bladder. Am I going to be going pee with so much urgency that it makes it useless? Does it still leak? Especially with urgency. Does it effect sexual activity(assuming I have any).? My condom catheter does not have any of those problems. Problems I have are inconvenience. I also have stripped all the pigment off my penis from the adhesive. I did Kegel exercises in the beginning . Did I give up to soon? The condom cath lets it free flow. Would kegels still help? Testing revealed I have a pretty good muscle when I hold it. It just releases when I am not.

My wife has GBM . We are on hospice. But thanks.

Jump to this post

Your questions are valid and important. Regarding Keagles my assumption is just like building up any other muscle group for strength it’s never too late to give it another try. A close friend of mine was having poor success with continence until he saw a pelvic floor therapist. The therapist analyzed what he was doing, figured out what he was doing wrong, was able to explain to him how to do it right. Now he’s fully continent. Might be worth a try.

REPLY
tuckerp | @tuckerp | May 9 8:20pm
In reply to @robertmizek "Thanks for joining our group. There are a lot of wonderful men and women who contribute..." + (show)
@robertmizek

Thanks for joining our group. There are a lot of wonderful men and women who contribute to this group and will cheer you on on your journey. Regarding the AUS my surgeon and I discussed this at length as an option if I couldn’t not regain continence. While I wasn’t looking forward to another surgery I was committed to getting one if need be. Fortunately, I have not needed one. Based on your comments, I think an AUS would be very helpful and help you regain a better quality of life. I have no doubt that there are some exceptional surgeons at Mayo that can perform the procedure.

Sorry to hear of your wife’s poor health. I wish you both the very best on your journey together.

Jump to this post

I believe my Mayo surgeon is one of the best. I put the operation on hold. I can not afford any down time. Concerns I have are how reliable is the equipment? Might I need additional surgeries? How comfortable is it to use? My testing revealed a hyperactive bladder. Am I going to be going pee with so much urgency that it makes it useless? Does it still leak? Especially with urgency. Does it effect sexual activity(assuming I have any).? My condom catheter does not have any of those problems. Problems I have are inconvenience. I also have stripped all the pigment off my penis from the adhesive. I did Kegel exercises in the beginning . Did I give up to soon? The condom cath lets it free flow. Would kegels still help? Testing revealed I have a pretty good muscle when I hold it. It just releases when I am not.

My wife has GBM . We are on hospice. But thanks.

REPLY
1 reply
robertmizek | @robertmizek | May 9 7:23pm

Thanks for joining our group. There are a lot of wonderful men and women who contribute to this group and will cheer you on on your journey. Regarding the AUS my surgeon and I discussed this at length as an option if I couldn’t not regain continence. While I wasn’t looking forward to another surgery I was committed to getting one if need be. Fortunately, I have not needed one. Based on your comments, I think an AUS would be very helpful and help you regain a better quality of life. I have no doubt that there are some exceptional surgeons at Mayo that can perform the procedure.

Sorry to hear of your wife’s poor health. I wish you both the very best on your journey together.

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.