What's your life like after Brain surgery?

Posted by lisa88bloom @lisa88bloom, Mar 22, 2017

I had a 4 cm mengioma removed last year. It was in the skull base and was 14 hr surgery. I have a small regiment left, but watching with yearly MRIs....still have unbalance and numbness. I was curious if anyone else had a situation like this one. I spent a month in the hospital.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Profile picture for Jamie Olson @jamienolson

Hello @robinlynn, Welcome to Mayo Clinic Connect! Thank you for posting. This community is a safe place for you to meet other people discussing their medical related experiences. We all learn from so much from each other!

Here is a link to Mayo Clinic's discussion on Pituitary tumors http://mayocl.in/2h5kGbu where they discuss treatment. I have also added another link to our research information center http://mayocl.in/2rpp3SW in hopes of digging up information on post radiation therapy. I hope you find both helpful.

What other problems besides fatigue have you been experiencing?
I wonder if starting a new topic thread in the cancer group about post radiation symptoms and how others are coping would be something you would be interested in? If so, I can walk you through the process or you can give it a go if you are interested. I am curious in knowing how many other people are asking some of the same questions.

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I think starting a thread about the late effects of chemo/radiation would be beneficial, along with ways to cope.

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Profile picture for gloriajean @gloriajean

I had brain surgery 2 yrs ago - successfully removed a benign 3 cm meningioma.
Sounds great
but I have balance problems, severe depression, ostopenia & other stuff. In reaearching all of these problems,
I've found out that the anti- seisure med (Kepra) causes a lot of these problems! .No doctor warned me of this.. So
my quality of life after surgery has been disappointing

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I had my surgery 7 years ago and since then I am on Keppra. I had similar problems of feeling sad/depressed (1-4 years) but now I am so used to Keppra and don't have any more issues. By the way, I take 2,000 mg daily. Sometimes...not always...time helps ...specially with brain issues, this is my opinion.

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Profile picture for gloriajean @gloriajean

I had brain surgery 2 yrs ago - successfully removed a benign 3 cm meningioma.
Sounds great
but I have balance problems, severe depression, ostopenia & other stuff. In reaearching all of these problems,
I've found out that the anti- seisure med (Kepra) causes a lot of these problems! .No doctor warned me of this.. So
my quality of life after surgery has been disappointing

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@gloriajean, what activities do you do to help correct the balance issues and depression? Do you find physical activities help? They may also help ostopenia.

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Profile picture for tiffanygal @tiffanygal

I had 2 Brain tumors removed in 2005. One was the size of a softball and the other was like a golf ball. All went well till 2016. For the last 2 years I can’t stand without swaying, dizzy always and totally fatigued. Went back to the neurologist and was told it was from scar tissue. There is nothing that can be done to help me he said.

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I had brain surgery 2 yrs ago - successfully removed a benign 3 cm meningioma.
Sounds great
but I have balance problems, severe depression, ostopenia & other stuff. In reaearching all of these problems,
I've found out that the anti- seisure med (Kepra) causes a lot of these problems! .No doctor warned me of this.. So
my quality of life after surgery has been disappointing

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Hello @intheyear2525 That is an amazing story! I hope the positives continue to follow you for many years to come!
Cheers to you!

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Hello my name is Jim just wanted to tell you I've had brain surgery in the past 4 yrs and now two cyberknife treatment cause tumors won't go away got 6 tumors hit by cyberknife and will go back in three more month to get checked out. I still golf fish and play ping pong haven't lost in years .I'm 70 years still fighting hang in there

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Profile picture for tiffanygal @tiffanygal

I had 2 removed and no problems for 10 years. Were you dizzy right after surgery?

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I had surgery in Oct 2017 went back to work in Jan had normal pain from healing but in the end of May I woke up with severe head pain and dizziness. The pain is like a constant stabbing at the surgery site. They have me on Cymbalta for nerve pain. Dizziness is just not letting up.

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I had 2 removed and no problems for 10 years. Were you dizzy right after surgery?

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In reply to @tiffanygal "Exactly" + (show)
Profile picture for tiffanygal @tiffanygal

Good to know! My doctors keep telling me it's normal after every brain surgery but haven't said my issues are caused by it. Now they want to check my heart thinking it is the cause of my dizziness. My blood pressure has also been high ever since the surgery. At this point I'm not sure what to do.

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Profile picture for hyoung79 @hyoung79

So encephelomalacia is scar tissue and is causing these symptoms?

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Exactly

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