Lichen planus

Hello @mjt, Welcome to Connect. Your symptoms sound a lot like mouth ulcers and I know they can be very painful. @loribmt @lioness and @lacy2 may have posted on the topic and may have some information to share with you. I did find some home treatments that may be helpful if you have not already tried them.

Mouth Ulcer: What Is It, Symptoms, Causes & Treatment: https://my.clevelandclinic.org/health/diseases/21766-mouth-ulcer

I know you mentioned you have not been able to schedule an appointment as soon possible. Does your healthcare provider offer telehealth appointments as an alternative?

Help. I developed this after Covid November 2020. I can not find anyone to treat this. My pcp told me it looked like oral lichen planus. I had to beg for lidocaine to make my own magic mouthwash. Currently I ran out but have Hurricane. It’s not cheap. I can’t find anyone to look at this. I got an appointment with an ENT 2 hours away…it took 3 months. He told me nothing was the matter. My response was it took 3 months to see him and I had treated it with self mixed magic mouthwash. All vinagered foods, toothpaste etc are killers. Currently I have 5 cold sores under my tongue, my salivary glad is inflamed as well as my gland on.the same side. ENT refused to biopsy. I have RA dx 10 years ago. Dermatologists appointments are 6 month wait, no dentist take new patients…do I go to an oncologist? Unfortunately all my doctors retired. This flare happened after I bit my cheek..again. Scar tissue there that makes it impossible not to rebite. My fabulous dentist retired , then passed away,..otherwise he would have helped me. It’s 3:30 am..I’m in so much pain I can’t sleep. Thank you and help. I currently am on a biologic infusion every month for my RA. My wbc is low..D3 low. All other vitamin levels ok, I am alo taking lysine, magnesium and zinc

Hi, Joy. The mushrooms are just the regular button kind from the grocery store. I usually just slice them up for salad. This casserole has a pound of them in it. Anyhoo... the medicine is Betamethasone in the evening and tacrolimus in the morning. I've been using this for a year, I believe. Take care! Linda

@lidnaj, My husband discovered he cannot eat morel mushrooms. This is a big deal here. People scour the woods for them. We have a friend with lots of acreage and we did enjoy hunting them. But, after years of being OK with them, he could not tolerate them and "lost" whatever else he was eating. All other mushrooms seem to be OK with him. What strange creatures are we! I wonder what kind of mushrooms you cannot tolerate. Would you mind telling me what steroid ointment you use? With all good wishes, @joybringe1

Very glad you have gotten it tamed. Mine is too through steroid ointment (vaginal). Anyway, do you know I had an incident with mushrooms, which I have been trying to use to replace protein in my low carb diet. I'm not sure if it is the same thing but I've been nauseous ever since last week. I'm going to cut them out and see if they are the cause. Anyway, thank you for the info. Good luck. Linda

I have had LP for several years and finally got it under control with Methotrexate. But I find eating mushrooms trigger an attack with me so I stay away from them. I am on just two 2.5mg. pills a week now (down from 8 pills a week) and on Stelara injection every 12 weeks.

I have been under medical care with my Dermatologist. It has been a process of trying different medicines. I also have meds for the itching, and for my scalp. I seem to be at a point where I am able to at least tolerate my lichen plantus. However, I understand that it will probably be an ongoing problem. I hope my information is helpful to your situation. Judy

@jlclaussen Welcome back to Mayo Clinic Connect, a place to give and get support.

It sounds like you have news of success to share. Congrats that your treatment is working.

Other members like @ema12 @lidnaj @markymark911 may be able to benefit from your knowledge and experience. May I ask the process you went through to get the correct treatment?

Hello. My doctor has started me on a regime of folic acid daily except on one day in the week, only, I take 6 pills of methotrexate. So far, I feel it has helped. I don't seem to itch as much and some of the spots on my legs are drying up. I am praying that this will be totally successful. Any relief is better than nothing, however. Good luck,

My burning mouth did go away. My lp went into remission for about 15 years. Just went to oral surgeon for my gums. He gave me a prescription for LIDEX GEL. I am picking it up today. Fingers crossed. Just keep trying to lower stress and support your immune system. Not many people have even heard of lichen planus. I am glad I found this blog and can share ideas. Just found a lady talking about lp in slow wound healing. Told her about this blog. She also has oral lp. We are in this together.