1. < Parkinson's Disease

Lewy Body Dementia

Posted by nnyllorac @nnyllorac, Apr 26, 2023

Have been caring for husband for 5 yrs with Lewy Body Dementia. I do not see this as a "defined" support group, but see a need for sharing the emotional aspects with other caregivers. It is similar to Parkinson's.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

drcmladd | @drcmladd | Apr 27, 2023

LBD is so different from AD or PD that a dedicated space makes so much sense. Both for caregivers and those of us living with it.

REPLY
melaniego | @melaniego | Apr 28, 2023

How does one find out whether they have LBD or PD?

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Apr 28, 2023

Hello @nnyllorac and @drcmladd

On Mayo Connect there is a support group for caregivers of LBD patients. Here is the link to that discussion group:
https://connect.mayoclinic.org/discussion/lewy-body-dementia-at-age-51/
Also, here are some blogs related to LBD:
https://connect.mayoclinic.org/blog/dementia-hub/

REPLY
Kim Webb | @mrjohnwebb | May 4, 2023
In reply to @melaniego "How does one find out whether they have LBD or PD?" + (show)
@melaniego

How does one find out whether they have LBD or PD?

Jump to this post

Go see a neurologist with a specialty in dementia. There are tests now that can confirm what disease is manifesting itself.

REPLY
1 reply
drcmladd | @drcmladd | May 5, 2023
In reply to @mrjohnwebb "Go see a neurologist with a specialty in dementia. There are tests now that can confirm..." + (show)
@mrjohnwebb

Go see a neurologist with a specialty in dementia. There are tests now that can confirm what disease is manifesting itself.

Jump to this post

Just be aware that the tests are not definitive - not yet. The only 100% definite way to diagnose LBD is through an autopsy of the brain.

REPLY
Please sign in or register to post a reply.