Leukoencephalopathy with animal spheroids and pigmented gila

Posted by sheen4343 @sheen4343, Mar 24 3:22pm

does anyone know of someone who has this disease? My friend has been seen at UOFM but a neurologist but he does not have any treatment available. There must be a something out there to at least slow progression down. Thank you in advance.

Hi, @sheen4343 – welcome to Mayo Clinic Connect. Wanted to confirm this description on the National Institutes of Health site is the same as the diagnosis your friend has? https://ghr.nlm.nih.gov/condition/adult-onset-leukoencephalopathy-with-axonal-spheroids-and-pigmented-glia

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