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Leiomyosarcoma from thoracic spine with bone involvement

Posted by michael911 @michael911, Mar 27 3:37pm

I was recently diagnosed with leiomyosarcoma from the thoracic spine with bone involvement. I had a laminectomy from T-4 to T-7 in late January. They are recommending proton radiation and chemotherapy after I am done with radiation because both concurrently will be dangerous for my spine. After multiple consultations even with a sarcoma specialist from Moffitt, they want to give me MAI chemotherapy. I read that leiomyosarcoma is chemotherapy resistant. Does anyone know anything about this or has the same cancer in the same location as I do? Should I seek another opinion at the Mayo Clinic? Please help.

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michael911 | @michael911 | Apr 10 8:24am
In reply to @colleenyoung "@michael911, you are in good hands at Moffitt to get proton beam treatment. Inpatient chemotherapy sounds..." + (show)
@colleenyoung

@michael911, you are in good hands at Moffitt to get proton beam treatment. Inpatient chemotherapy sounds like that will be intense. Do you know what type of chemotherapy drugs you'll be getting?

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Hi Colleen,

I will be getting Mesna, Ifex, and Doxorubicin. This will be an impatient treatment for five days, two weeks off, then back to the hospital for 5 days on the third week. This cycle will repeat at least three times.

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