Hello @ron15, welcome to Connect. I have idiopathic small fiber peripheral neuropathy in both legs but only have numbness, no pain. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where it will receive more visibility.
Hello @ron15, welcome to Connect. I have idiopathic small fiber peripheral neuropathy in both legs but only have numbness, no pain. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where it will receive more visibility.
I went to a doctor and he gave me electric shocks in my legs and then told me I have neuropathy. he said 50% of the nerves in my right leg are dead. I need to walk with a cane for balance. it Is kinda hard to stand up, once up I can walk slowly. I don't know what kind of neuropathy I have. didn't even know there were so many kinds.
I have it in both legs, it is much worse in my left in terms of numbness, but the pain seems to be equally distributed. There is no real pattern to the pain, it comes and goes at it pleases. I am ok with balance at this point, best wishes to you.
I have it in both legs, it is much worse in my left in terms of numbness, but the pain seems to be equally distributed. There is no real pattern to the pain, it comes and goes at it pleases. I am ok with balance at this point, best wishes to you.
I was diagnosed with Neuropathy this week. Doctor suggested a medication called Lyrica; said will not cure it but would help with the extreme discomfort. Pain came on fast, but is really bad at night. Difficulty sleeping. Has anyone used this medicine and did it help?
There is another discussion on Connect that you might want to join in and meet other members with your symptoms that can share their experience with Lyrica and Gabapentin here:
There is another discussion on Connect that you might want to join in and meet other members with your symptoms that can share their experience with Lyrica and Gabapentin here:
Diagnosis was neuropathy with unknown cause….. Blood tests have determined not diabetic. No real change in blood test from a year ago except little low on Vit B12, which I checked and affects nerves. I am now taking this. Started a few weeks ago, extreme sensitivity in my right knee and legs, numbness in toes and feet……..anything touching was a problem. Problems sleeping….I have a history of restless leg syndrome from time to time, so got up, walked, elevated legs, etc. it got worse……I am now experiencing it to some degree all the time. Will check website….Thank you.
Diagnosis was neuropathy with unknown cause….. Blood tests have determined not diabetic. No real change in blood test from a year ago except little low on Vit B12, which I checked and affects nerves. I am now taking this. Started a few weeks ago, extreme sensitivity in my right knee and legs, numbness in toes and feet……..anything touching was a problem. Problems sleeping….I have a history of restless leg syndrome from time to time, so got up, walked, elevated legs, etc. it got worse……I am now experiencing it to some degree all the time. Will check website….Thank you.
I have neuropathy in my legs. my legs are always weak. I am usually up 3-4 times a night. about 3 am I get the restless legs and move to my recliner to sleep for a couple hours. then I can go back to bed and sleep.
I don’t have pain all a the time but extreme pain at night , not every night , that makes it hard to sleep and then goes away in the morning. It’s under control with pain medication that have figured when to take during the day to time it so once I am asleep the pain is mild enough that i don’t feel it. But if I am on off on my meds in the afternoon by a bit and don’t sleep on time, then it gets to be unbearable. Any body else experience extreme pain on occasion but not all the time?
I don’t have pain all a the time but extreme pain at night , not every night , that makes it hard to sleep and then goes away in the morning. It’s under control with pain medication that have figured when to take during the day to time it so once I am asleep the pain is mild enough that i don’t feel it. But if I am on off on my meds in the afternoon by a bit and don’t sleep on time, then it gets to be unbearable. Any body else experience extreme pain on occasion but not all the time?
Hi , I can relate to that , its all relative to the amount of activity I do during the day, I can get awful shin pain at night, I sometimes put an ice pack on my shins in bed which gives good relief. Sean
My pain comes and goes, but it is worse at night when I try to sleep. I have not figured out why this happens, it seems it has a mind of its own. I can handle the pain during the day, for the most part. However, at night when I am trying to sleep it is the worst, I wish I had some answers for you, hang in there, I hope you able to find some relief.
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Hello @ron15, welcome to Connect. I have idiopathic small fiber peripheral neuropathy in both legs but only have numbness, no pain. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where it will receive more visibility.
> Groups > Neuropathy > Living with Neuropathy – Welcome to the group
— https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
Are you able to share a little more about your neuropathy symptoms and diagnosis?
I went to a doctor and he gave me electric shocks in my legs and then told me I have neuropathy. he said 50% of the nerves in my right leg are dead. I need to walk with a cane for balance. it Is kinda hard to stand up, once up I can walk slowly. I don't know what kind of neuropathy I have. didn't even know there were so many kinds.
I have it in both legs, it is much worse in my left in terms of numbness, but the pain seems to be equally distributed. There is no real pattern to the pain, it comes and goes at it pleases. I am ok with balance at this point, best wishes to you.
thanks. I just wish I knew if there was something I could do.
I tried the CBD oil and it didn't do a thing.
I was diagnosed with Neuropathy this week. Doctor suggested a medication called Lyrica; said will not cure it but would help with the extreme discomfort. Pain came on fast, but is really bad at night. Difficulty sleeping. Has anyone used this medicine and did it help?
Hello @jeanray, welcome to Connect. I also have neuropathy – mine is idiopathic small fiber PN. I posted my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
There is another discussion on Connect that you might want to join in and meet other members with your symptoms that can share their experience with Lyrica and Gabapentin here:
> Groups > Neuropathy > Living with Neuropathy – Welcome to the group
— https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
Are you able to share a little more about your diagnosis and your pain symptoms?
Diagnosis was neuropathy with unknown cause….. Blood tests have determined not diabetic. No real change in blood test from a year ago except little low on Vit B12, which I checked and affects nerves. I am now taking this. Started a few weeks ago, extreme sensitivity in my right knee and legs, numbness in toes and feet……..anything touching was a problem. Problems sleeping….I have a history of restless leg syndrome from time to time, so got up, walked, elevated legs, etc. it got worse……I am now experiencing it to some degree all the time. Will check website….Thank you.
I have neuropathy in my legs. my legs are always weak. I am usually up 3-4 times a night. about 3 am I get the restless legs and move to my recliner to sleep for a couple hours. then I can go back to bed and sleep.
I don’t have pain all a the time but extreme pain at night , not every night , that makes it hard to sleep and then goes away in the morning. It’s under control with pain medication that have figured when to take during the day to time it so once I am asleep the pain is mild enough that i don’t feel it. But if I am on off on my meds in the afternoon by a bit and don’t sleep on time, then it gets to be unbearable. Any body else experience extreme pain on occasion but not all the time?
Hi , I can relate to that , its all relative to the amount of activity I do during the day, I can get awful shin pain at night, I sometimes put an ice pack on my shins in bed which gives good relief. Sean
My pain comes and goes, but it is worse at night when I try to sleep. I have not figured out why this happens, it seems it has a mind of its own. I can handle the pain during the day, for the most part. However, at night when I am trying to sleep it is the worst, I wish I had some answers for you, hang in there, I hope you able to find some relief.