Hello @ron15, welcome to Connect. I have idiopathic small fiber peripheral neuropathy in both legs but only have numbness, no pain. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where it will receive more visibility.

> Groups > Neuropathy > Living with Neuropathy – Welcome to the group
— https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Are you able to share a little more about your neuropathy symptoms and diagnosis?

@johnbishop

Hello @ron15, welcome to Connect. I have idiopathic small fiber peripheral neuropathy in both legs but only have numbness, no pain. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion where it will receive more visibility.

> Groups > Neuropathy > Living with Neuropathy – Welcome to the group
— https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Are you able to share a little more about your neuropathy symptoms and diagnosis?

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I went to a doctor and he gave me electric shocks in my legs and then told me I have neuropathy. he said 50% of the nerves in my right leg are dead. I need to walk with a cane for balance. it Is kinda hard to stand up, once up I can walk slowly. I don't know what kind of neuropathy I have. didn't even know there were so many kinds.

I have it in both legs, it is much worse in my left in terms of numbness, but the pain seems to be equally distributed. There is no real pattern to the pain, it comes and goes at it pleases. I am ok with balance at this point, best wishes to you.

@salsa

I have it in both legs, it is much worse in my left in terms of numbness, but the pain seems to be equally distributed. There is no real pattern to the pain, it comes and goes at it pleases. I am ok with balance at this point, best wishes to you.

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thanks. I just wish I knew if there was something I could do.

I tried the CBD oil and it didn't do a thing.

I was diagnosed with Neuropathy this week. Doctor suggested a medication called Lyrica; said will not cure it but would help with the extreme discomfort. Pain came on fast, but is really bad at night. Difficulty sleeping. Has anyone used this medicine and did it help?

Hello @jeanray, welcome to Connect. I also have neuropathy – mine is idiopathic small fiber PN. I posted my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

There is another discussion on Connect that you might want to join in and meet other members with your symptoms that can share their experience with Lyrica and Gabapentin here:

> Groups > Neuropathy > Living with Neuropathy – Welcome to the group
— https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Are you able to share a little more about your diagnosis and your pain symptoms?

@johnbishop

Hello @jeanray, welcome to Connect. I also have neuropathy – mine is idiopathic small fiber PN. I posted my story earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

There is another discussion on Connect that you might want to join in and meet other members with your symptoms that can share their experience with Lyrica and Gabapentin here:

> Groups > Neuropathy > Living with Neuropathy – Welcome to the group
— https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Are you able to share a little more about your diagnosis and your pain symptoms?

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Diagnosis was neuropathy with unknown cause….. Blood tests have determined not diabetic. No real change in blood test from a year ago except little low on Vit B12, which I checked and affects nerves. I am now taking this. Started a few weeks ago, extreme sensitivity in my right knee and legs, numbness in toes and feet……..anything touching was a problem. Problems sleeping….I have a history of restless leg syndrome from time to time, so got up, walked, elevated legs, etc. it got worse……I am now experiencing it to some degree all the time. Will check website….Thank you.

@jeanray

Diagnosis was neuropathy with unknown cause….. Blood tests have determined not diabetic. No real change in blood test from a year ago except little low on Vit B12, which I checked and affects nerves. I am now taking this. Started a few weeks ago, extreme sensitivity in my right knee and legs, numbness in toes and feet……..anything touching was a problem. Problems sleeping….I have a history of restless leg syndrome from time to time, so got up, walked, elevated legs, etc. it got worse……I am now experiencing it to some degree all the time. Will check website….Thank you.

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I have neuropathy in my legs. my legs are always weak. I am usually up 3-4 times a night. about 3 am I get the restless legs and move to my recliner to sleep for a couple hours. then I can go back to bed and sleep.

I don’t have pain all a the time but extreme pain at night , not every night , that makes it hard to sleep and then goes away in the morning. It’s under control with pain medication that have figured when to take during the day to time it so once I am asleep the pain is mild enough that i don’t feel it. But if I am on off on my meds in the afternoon by a bit and don’t sleep on time, then it gets to be unbearable. Any body else experience extreme pain on occasion but not all the time?

@legpain123

I don’t have pain all a the time but extreme pain at night , not every night , that makes it hard to sleep and then goes away in the morning. It’s under control with pain medication that have figured when to take during the day to time it so once I am asleep the pain is mild enough that i don’t feel it. But if I am on off on my meds in the afternoon by a bit and don’t sleep on time, then it gets to be unbearable. Any body else experience extreme pain on occasion but not all the time?

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Hi , I can relate to that , its all relative to the amount of activity I do during the day, I can get awful shin pain at night, I sometimes put an ice pack on my shins in bed which gives good relief. Sean

My pain comes and goes, but it is worse at night when I try to sleep. I have not figured out why this happens, it seems it has a mind of its own. I can handle the pain during the day, for the most part. However, at night when I am trying to sleep it is the worst, I wish I had some answers for you, hang in there, I hope you able to find some relief.

@jeanray

I was diagnosed with Neuropathy this week. Doctor suggested a medication called Lyrica; said will not cure it but would help with the extreme discomfort. Pain came on fast, but is really bad at night. Difficulty sleeping. Has anyone used this medicine and did it help?

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Didn’t work

Hello. I have small fiber peripheral neuropathy throughout my whole body. B12 deficiency. Literally from the top of my head to my toes, but yes, both legs. My calves feel like bricks and my legs feel like cement. They burn, they ache, they are heavy and continue with cold flush sensations among other strange feelings. Lyrica CR has helped the majority of sunburn feeling and pins and needles. I do not have balance issues but, to walk is to be in pain. The more I walk, the more debilitating it gets. I have to walk very slow and gingerly now. So, one could say I'm in control by IF I choose to walk or not. It's a double edged sword…on one hand I'm defiant and so help me…at age 49 as long as I can put one foot in front of the other, I'm walking! I think of the people who can't and the possibility that I may not be able to at all one day. On the other hand I'm creating my own misery. Out of my whole body's neuropathy, I must admit, these legs are really doing me in. Hands also have been one of the bigger challenges. The future scares me but, I try to stay positive and keep actively pursuing treatments. Life has come to a screeching halt and every day I continue to adapt to my "new norm". It sucks for me, my husband and my children.

Trying to keep the glass half full…cheers my friends!

@rwinney

Hello. I have small fiber peripheral neuropathy throughout my whole body. B12 deficiency. Literally from the top of my head to my toes, but yes, both legs. My calves feel like bricks and my legs feel like cement. They burn, they ache, they are heavy and continue with cold flush sensations among other strange feelings. Lyrica CR has helped the majority of sunburn feeling and pins and needles. I do not have balance issues but, to walk is to be in pain. The more I walk, the more debilitating it gets. I have to walk very slow and gingerly now. So, one could say I'm in control by IF I choose to walk or not. It's a double edged sword…on one hand I'm defiant and so help me…at age 49 as long as I can put one foot in front of the other, I'm walking! I think of the people who can't and the possibility that I may not be able to at all one day. On the other hand I'm creating my own misery. Out of my whole body's neuropathy, I must admit, these legs are really doing me in. Hands also have been one of the bigger challenges. The future scares me but, I try to stay positive and keep actively pursuing treatments. Life has come to a screeching halt and every day I continue to adapt to my "new norm". It sucks for me, my husband and my children.

Trying to keep the glass half full…cheers my friends!

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Hi, have you looked into trying MFR, or Myofascial Release Therapy? After just 1 session I could feel a reduction in the affects of neuropathy in my feet. After my 4th treatment, I can walk for 20-30 minutes, when before it was maybe less than 10 minutes. There are self treatments as well you do at home to help loosen the fascia in between sessions or not. This has really helped me with my attitude for life after a fall down stairs in Paris in 2012.
I also highly recommend the very gentle position of laying on your back and putting your legs up against the wall, like an L. If you are not real flexible, that’s ok, even getting your butt a foot away from the wall with your legs up, will relieve pooling of blood and fluids and drains by gravity. I do it to compliment my MFR treatments. I am a true believer in MFR as I have been a very strong proponent of this therapy as I have tried pretty much everything in the book. This is truly the first therapy where I have felt good for more than a few hrs. Now it’s much longer.
Hope this helps and good luck finding what you are looking for!!