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julie1976 (@julie1976)

Left Frontal Meningioma surgery recovery

Brain Tumor | Last Active: May 18, 2020 | Replies (30)

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@julie1976

thanks ­čÖé May I ask what is trigeminal neuralgia I'm pretty new to all this . I have questions for my NS I don't even know the name of what I had. I'm sure this is all info for the post op

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Replies to "thanks :) May I ask what is trigeminal neuralgia I'm pretty new to all this ...."

@julie1976 Trigeminal neuralgia is a chronic pain disorder that affects the trigeminal nerve, a cranial nerve. In my case, it was the reason I found my tumor. For five years, I had been experiencing pain, numbness, tingling, burning, on the left side of my head, face, and mouth that could be a level 2 pain one day, and a level 10 the next. I explained this to several doctors and dentists – they all said it was likely due to a root canal that damaged the nerve. It wasn't until I was at a level 10 for months straight and went to an oral surgeon and told him the pain felt like there was an infection in my brain. Finally, he became concerned enough to order an MRI, which revealed the meningioma right near the nerve. The pain since surgery has subside tremendously. It's not gone, but it is manageable at a level 2/3 with an exacerbation to a level 5 during the times I mentioned in my last post.