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LDN, surgery and opioid need?
I’m taking LDN 6mg. It worked well for a good 8 months relieving my pain by about 85-90 percent. Recently had most horrible flare since first onset of fibromyalgia, 18 years ago. It was so bad that I’m thinking of going back on one of the fibromyalgia drugs (was taking Cymbalta before), don’t want to go back on cause of long term withdrawal effects and doctors not knowing how to taper off it. trying to get specialist to guide/counsel me on 1). LDN, should I stop it? I’ve been reading about how you need to stop it before surgery. As I understand it the need for drugs used during surgery, anesthesia or thereafter for pain (opioids) would have to be excess or not work , of what is usually needed because of the LDN. What if I have need emergency surgery? My health system doesn’t have the LDN on my medications list maybe cause it’s not an option on their system? Every time I see a doctor they go over my medication list and do not have LDN on there. Also who would believe that I need more medication/opioids , because they don’t know anything about LDN. I can’t imagine having more pain because of course the fibromyalgia but also because opioids don’t work with LDN and me being in an emergency situation not being able to express myself and even if I could, where no one knows/believes/cares about the LDN interaction. 2) the first medication I took for fibromyalgia was Amitriptyline and it helped however it cause a QT longation of the heart so I can’t take it so I need to know what the other options are. And if their going to cause me to be even more tired, unmotivated, down. Any one had surgery or opioid need while on LDN?
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what is LDN
Christine
Australia
@christine2076 LDN stands for low-dose Naltrexone.
@christine2076
I would insist that the GP put that on your chart. Even a seethis information and then listing it.
The doctor who prescribes this should add it to your chart someplace.
It is possible to wear a bracelet made for you that says that you have fibromyalgia and the you are taking low dose LDN.
Try looking on Amazon. You could have extra information added for you by someone, a jeweler? if there is nothing specific out there.
Have you tried the new dissolving tablets that are taken at night that are supposed to provide greater relief than the original cyclobenzeprine?
@christtine2076
New tablets are called Tonmya.
@christine2076 Hi Christine. Sorry for late response. Low dose naltrexone is a formula of naltrexone. It is being explored for chronic pain conditions where inflammation and immune dysfunction issues. You have to find a doctor to prescribe it and it has to be ordered from a compound pharmacy. You can find important information on the LDN research trust website or AFSA (American Fibromyalgia Syndrome Association) website. You can find information on any of the teaching universities, Stanford, Cleveland, Mayo Clinic, etc too. Even better do a search on here, the fibromyalgia group by “LDN” and you will find a wealth of information from people who are using it, dosage, time of day to take it, how long it takes to take effect, etc. it worked pretty well for me until I had this last awful flare up. Peace and love.
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1 ReactionThanks timely,
I think your comments are in response to Jeannes.
Thank you.
Christine
Aussie
Thank you. Yes! I am considering getting a bracelet. My insurance here in California is Kaiser. I had to get the prescription from a Doctor on line. My GP, doesn’t want anything to do with the LDN. She doesn’t even acknowledge it. I have appointment tomorrow with GP and will ask if/why it can’t be placed in my medical record. The new drug you mention is that Tonmya? Isn’t that the very expensive one? I haven’t even considered Tonmya because of the cost. Is it basically another muscle relaxant?
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1 ReactionThanks Jeannes
Will do that
\Christine