Laryngopharyngeal Reflux (LRP) - severity and outlook?

Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of the chronic cough caused by reflux. After suffering for 7 years w/nothing helping. Nortryptiline was like someone flipped a switch.
Read ‘Chronic Cough Enigma’ by Jamie Kouffman & ‘Killing Me Softly’ (can’t remember author. < 3

Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of the chronic cough caused by reflux. After suffering for 7 years w/nothing helping. Nortryptiline was like someone flipped a switch.
Read ‘Chronic Cough Enigma’ by Jamie Kouffman & ‘Killing Me Softly’ (can’t remember author. < 3

Hello @dancemom57, and welcome to Connect. I moved your discussion post and combined it with an existing conversation titled, "Laryngopharangyl reflux (LPR) - severity and outlook?" I moved your post here so you could meet all of the other Connect members already discussing LPR.

If you are responding by email, I suggest scrolling to the bottom and clicking on the VIEW & REPLY button so that you will be brought to the conversation in its entirety on the Connect site.

@dancemom57, what sort of suggestions are you looking from the other members talking about LPR on Connect?

Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of the chronic cough caused by reflux. After suffering for 7 years w/nothing helping. Nortryptiline was like someone flipped a switch.
Read ‘Chronic Cough Enigma’ by Jamie Kouffman & ‘Killing Me Softly’ (can’t remember author. < 3

I had the LINX done Dec 2014. Had I known what I know now I would have never had it done. First of all insurance said they would cover it and after 4 months changed their minds and said it was experimental, after all the appeals I ended up paying 6,600! After reading the book I recommended above found out I have fructose interlorance. Mayo even tested me for it and was negative. I still had to take meds twice a day after surgery, many people do so there is no quarantee you'll ever get off them. I did get off the PPI's and took 2 Zantac's a day. Once I cut out the fruit and carbs I haven't had to take meds at all! Now the problem is everytime I get gas by cheating it puts pressure on the device and it's really hard to burp. The pain is very uncomfortable. Also the pain after surgery was horrible for about 4 days until the swelling went down, it was very difficult to eat but you have to to avoid scar tissue. I would highly recommend trying to cut out food groups before surgery. I can have it dilated but that is also very expensive. I eat Paleo without fruit or honey ect. You can also try the FODMAP diet. Also anything high in fiber can ferment in your upper intestine and cause gasses that push the acid up your esophagus. All the so called reflux diets never worked for me, they always push fruits and vegetables and that was causing the problem for 30 years!

Kay, I have exactly what you state. I will have one cup of coffee at 2 P.M. I am a tea drinker and I drink green decaffeinated tea twice a day. I am on a mostly vegetable and non processed turkey. I will eat barbecue brisket once a week with very little sauce. I drink a glass of watered down soy milk with lunch because it is thicker than milk. Sounds icky doesn't it? I developed a taste for it. Some say caffeine and dairy can aggravate "Silent Reflux" but I have a glass of skim milk sometimes instead of soy milk. I go to bed with the mucous. However, once I get relaxed and sleepy I sleep well. So it does not interfere with my sleep or gets any worse like those with "Acid Reflux". There are 2 or 3 days a week where it doesn't bother me very much. Then I go back and see what it was that aggravated it when it returns. I never find the culprit. When I think it is the coffee, the Soy Milk or something I ate I stop eating or drinking it. However, it still returns. It's worse in the evening from after dinner to bedtime (Midnight). I do a lot of hacking to get the mucous up. If after I eat and it bothers me, I take two tablespoons of "Mylanta". That helps about 3/4 of the time. I don't experience any acid but it seems to help anyway.

Ocassionally, I will get a coughing spell but not too often. Most mornings I wake up and I start off fine. I may have a little Post Nasal Drip. I take 3 Generic "Benadryl" when I wake up. I think that helps. If you can take it twice a day, do it. I use to. However, at night it caused me "Restless Leg Syndrome". If I got up and walked around the house for about 15 minutes or went in and watched TV, it went away. I am not overweight but a little underweight since I cut back on all the junk food.

I notice that if I eat smaller meals, it helps. If I eat an apple or two, it helps instantly in clearing up the mucous for awhile and sometimes for longer periods. I try to drink a lot of water during the day and more at night. I wish I knew what exactly triggers it and why it doesn't trigger it, which is less frequently. Sometimes I will go in and sit in a chair or lay down, listen to some music, relax and it subsides some. I hope some of this info helps. Try the apple and see if that helps.
Phil

Thanks Mistea,
for the other resources you gave me in this email. From medical reports that I have read PPI's are not effective for treating LPR - and yet that is what we are prescribed! There maybe a placebo effect. I will start trying alternative therapies .
I hope that you also find a more acceptable way to manage the problem. Best wishes.

@lycia
I would appreciate your help. What have you found that helps with LPR, GERD, and burning mouth? I have read that taking alginate is helpful. I am waiting to hear back from endocrinologist to get their approval. I had thyroid cancer a few years ago and take a higher dose of Levothyroxine.

@louwood - wondering what your endocrinologist had to say about taking alginate?

@louwood - wondering what your endocrinologist had to say about taking alginate?