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Laryngopharyngeal Reflux (LRP) - severity and outlook?

Posted by davearnatt @davearnatt, Jan 9, 2017

I have had LPR / reflux for about 5 years and have made the normal lifestyle changes (diet, bed, etc) which reduced symptoms slightly. PPIs do not seem to help so we suspect pepsin rather than acid. The severity of symptoms changes over time with throat "experiences" occuring roughly as follows:

No problem (10%)
Cold feeling like finishing a breath mint (30%)
Like a mild burn from food + tightness (40%)
Moderate to intense pain/redness (20%)

By now, the odds of resolving this seem remote. My doctor talked about me entering "another phase" which feels like it will get worse. My questions:

1. Does anyone have any feedback/experience about the potential impact of this type of continual inflammation leading to severe problems including cancer? Is it possible that just learning to live with this is an option that will not end with something awful?

2. Does anyone have any experience/feedback on surgery options besides classic Nissen fundoplication? I have read about Linx (magnetic ring) and partial (270 degree) fundoplication.

Thank you for any advise or help you can offer!

Interested in more discussions like this? Go to the Digestive Health Support Group.

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cezanne | @cezanne | Mar 13 6:40am
In reply to @dearley "Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of..." + (show)
Profile picture for dearley @dearley

Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of the chronic cough caused by reflux. After suffering for 7 years w/nothing helping. Nortryptiline was like someone flipped a switch.
Read ‘Chronic Cough Enigma’ by Jamie Kouffman & ‘Killing Me Softly’ (can’t remember author. < 3

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@dearley I found Kouffman's book on Chronic Cough useful too. When I go by dietary guidelines for the condition, the level of muscus does improve. I do have hoarseness also.

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Moderator
Lisa Lucier, Moderator | @lisalucier | Mar 13 9:20am
In reply to @dearley "Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of..." + (show)
Profile picture for dearley @dearley

Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of the chronic cough caused by reflux. After suffering for 7 years w/nothing helping. Nortryptiline was like someone flipped a switch.
Read ‘Chronic Cough Enigma’ by Jamie Kouffman & ‘Killing Me Softly’ (can’t remember author. < 3

Jump to this post

Hi @dearley - I believe the full title of the book you were referencing and the author is:
Killing Me Softly From Inside: The Mysteries & Dangers Of Acid Reflux And Its Connection To America's Fastest Growing Cancer With A Diet That May Save Your Life by Jonathan E. Aviv

Is this correct?

Would you have two or three key tips from this book and the Chronic Cough Enigma book by Jamie Kouffman that helped you?

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sylvermoon8 | @sylvermoon8 | Mar 15 10:46am
In reply to @JustinMcClanahan "Hello @dancemom57, and welcome to Connect. I moved your discussion post and combined it with an..." + (show)
Profile picture for Justin McClanahan, Moderator @JustinMcClanahan

Hello @dancemom57, and welcome to Connect. I moved your discussion post and combined it with an existing conversation titled, "Laryngopharangyl reflux (LPR) - severity and outlook?" I moved your post here so you could meet all of the other Connect members already discussing LPR.

If you are responding by email, I suggest scrolling to the bottom and clicking on the VIEW & REPLY button so that you will be brought to the conversation in its entirety on the Connect site.

@dancemom57, what sort of suggestions are you looking from the other members talking about LPR on Connect?

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@JustinMcClanahan I’m interested where did you move her post?

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cezanne | @cezanne | Mar 19 9:42am
In reply to @dearley "Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of..." + (show)
Profile picture for dearley @dearley

Amitrytiline or Nortryptiline, believe it or not these have an affect on the neurological aspect of the chronic cough caused by reflux. After suffering for 7 years w/nothing helping. Nortryptiline was like someone flipped a switch.
Read ‘Chronic Cough Enigma’ by Jamie Kouffman & ‘Killing Me Softly’ (can’t remember author. < 3

Jump to this post

@dearley I read Kouffman’s books, modified my diet roughly based on her suggestions and my symptoms are reduced.

REPLY
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cezanne | @cezanne | Mar 19 9:47am
In reply to @saucy "I had the LINX done Dec 2014. Had I known what I know now I would..." + (show)
Profile picture for saucy @saucy

I had the LINX done Dec 2014. Had I known what I know now I would have never had it done. First of all insurance said they would cover it and after 4 months changed their minds and said it was experimental, after all the appeals I ended up paying 6,600! After reading the book I recommended above found out I have fructose interlorance. Mayo even tested me for it and was negative. I still had to take meds twice a day after surgery, many people do so there is no quarantee you'll ever get off them. I did get off the PPI's and took 2 Zantac's a day. Once I cut out the fruit and carbs I haven't had to take meds at all! Now the problem is everytime I get gas by cheating it puts pressure on the device and it's really hard to burp. The pain is very uncomfortable. Also the pain after surgery was horrible for about 4 days until the swelling went down, it was very difficult to eat but you have to to avoid scar tissue. I would highly recommend trying to cut out food groups before surgery. I can have it dilated but that is also very expensive. I eat Paleo without fruit or honey ect. You can also try the FODMAP diet. Also anything high in fiber can ferment in your upper intestine and cause gasses that push the acid up your esophagus. All the so called reflux diets never worked for me, they always push fruits and vegetables and that was causing the problem for 30 years!

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@saucy Hello, like many others, I have multiple conditions and what is recommended for one might aggravate another. I incorporated what I could for the LPR but can’t handle fiber ( beans, uncooked vegetables etc) because of hiatal hernia and IBS. It is a balancing act for sure.

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