Laryngectomy, to be or not to be.
Hi, I am hoping some of you may be able to give me some first hand knowledge on having my Larynx removed!
After nearly 4 years initially which included 35 rad treatments and Chemo for 7 weeks I was given an initial diagnosis of possible remission. The problem being a very large squamous cell carcinoma and in stage 4. Many follow up visits including the ENT and rad Oncologist over the past years with each year bringing different problems, be it swelling, choking, phlegm, lack of voice and the Old problem that started it all massive ongoing pain from my Tri Geminal Nerve. This nerve was initially affected by the Tumour and the tumour progressed along it until it reached my throat. At this stage it was finally diagnosed by a PET Scan. Unfortunately for me it required an extremely high dose of radio therapy which has left me with an enlarged but also necrotic larynx.
I have been informed by the ENT that the Larynx will need to come out as it could either turn cancerous or septic and become life threatening.
I am hoping some wise soul who has been through the experience can lead me to make a decision on removal.