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Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Neuroendocrine Tumors (NETs) | Last Active: Apr 21 3:05am | Replies (70)Comment receiving replies
5 months ago, I had a 'gut' feeling (no symptoms) and chose to pay for a full-body MRI. They discovered metastatic NETs in my sm. bowel which spread to my liver (8-10 lesions. They told me slow growing, but luckily last week I went to the ER where they found the cancer had grown 2 cm. (in 2 months). No longer slow. I am in a clinical trial and being treated by an NET Oncologist. Surgery is not an option and I am on Lanreotide (Somatuline). They are hoping it will slow down the spreading.
My suggestion: find a specialist in NETs and be proactive. If you can get in a Clinical Trial then moving forward might be faster. Timing is everything. With newer tests, they are finding out more and more people that have this. I wish you the best of luck!
Replies to "5 months ago, I had a 'gut' feeling (no symptoms) and chose to pay for a..."
How old are you? Why is surgery not an option ? Im 55yr old male. I was diagnosed with the same January 2023. I started Somatuline 2/15. I went to the ER 4/20 bloated and in pain. B/c the SINET was blocking my SI I had SI resection, 2.5cm NET, the GB, and 8 lymphnodes removed. I feel great now and gained 15lbs since. Im exercising daily etc.. The NETs in the liver haven't changed, im being told after 2 subsequent MRIs. Hang in there🙏.
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Why is a clinical trial helpful?