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Kisquli Tolerance ?

Posted by briarrose @briarrose, Jun 26 10:59am

My new breast oncologist has suggested Kisquli (ribociclib) to add on to my exemestane. A decision has to be made fast since I am 13 months out since my BM. I am now finding that the "medication" oncologists (at a couple of leading breast centers) are leaving it up to the patient to make the final decision to start any new medications or refuse. Facts are presented (as the physician sees them) to the patient, no guarantees made and the oncologist "seems" to be in the middle. I get it - the "informed decision" but it's a very tough call to make. How are those of you, taking Kisquli, finding the tolerance for the side effects (of which there are many, as we all know) of this drug?
Onco type 14, 1 + node, cancer in both breasts, stage IIb. The AI was the only recommended treatment made to me in 2025. Apparently "guidelines" have changed in 1 year.

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briarrose | @briarrose | Jun 28 12:43pm
In reply to @mir123 "@briarrose Have you spoken to your own pharmacist? I've found they can be very helpful. We..." + (show)
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@briarrose Have you spoken to your own pharmacist? I've found they can be very helpful. We can share our own experiences here on Connect, but don't give medical advice as we're not medical professions. I hope you are getting some good feedback, but to make the decision a pharmacist might help. Did you ever see an oncology pharmacist? I think you mentioned that possibility.

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@mir123
Yes, the cancer center's pharmacist called me yesterday. We reviewed what medications are in question. He wasn't much help though. He said a couple of times "possible side effects"...emphasizing the word "possible". He was very low keyed in the conversation. It was me who said I will contact my cardiologist since it seems the ranolazine I am on is the most worrisome. I am also in a "cancer resource program" within my health insurance. I plan on calling them also to discuss my medications and interactions with Kisqali. Hopefully they can give me more information to help me with my decision. It's not easy. No one has a crystal ball to predict anything. It's almost like the roll of the dice.

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Miriam, Volunteer Mentor | @mir123 | Jun 28 3:35pm
In reply to @briarrose "@mir123 Yes, the cancer center's pharmacist called me yesterday. We reviewed what medications are in question...." + (show)
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@mir123
Yes, the cancer center's pharmacist called me yesterday. We reviewed what medications are in question. He wasn't much help though. He said a couple of times "possible side effects"...emphasizing the word "possible". He was very low keyed in the conversation. It was me who said I will contact my cardiologist since it seems the ranolazine I am on is the most worrisome. I am also in a "cancer resource program" within my health insurance. I plan on calling them also to discuss my medications and interactions with Kisqali. Hopefully they can give me more information to help me with my decision. It's not easy. No one has a crystal ball to predict anything. It's almost like the roll of the dice.

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@briarrose I hope you get additional useful information! I know from my breast cancer diagnosis and treatment that there is indeed a lot of (nerve wracking) gray zone.

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