Kidney stones

Posted by Gary, Alumni Mentor @gman007, Mar 9, 2018

I am usually trying to help folks understand their symptoms, but need some myself now. I have chronic pancreatitis and have had it long enough that the way that pain manifests itself is pretty familiar. I have been experiencing a pain that is about an 8 on the typical 1-10 scale, but is more in my flank and lower than where my pancreas pain is. It is also very tender to the touch and if I move in any way that involves my torso the pain screams at me. I take pretty stri=ong opiates for my pancreatitis, so the pain is not being affected by those meds or if it is, I would be crying without them. Anyone have any thoughts? I already have had a urinalysis and it is not an infection in kidneys, bladder, or urinary tract. I am thinking kidney stone, but have never had the pleasure, so that is simply a guess.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

@waterboy

I had adominal surgery at Mayo Clinic, Rochester, on Halloween 2016 for a dumbell shaped stone.... one end in my bladder the other in my prostate.... BOTH ENDS WERE ALMOST 1 IN DIA. I also had a 1 in bladder stone remove during my TURP in 7 5015

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did it work? i have stents in now. my body creates to much calcium. I've had stones since the age of 10. now I'm 42 and they keep coming. biggest stone yet. i just want to feel better

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Both surgeries went fine, however the surgery on 7/2015 was NOT cleaned out properly (in both my opinion and the urologist at Mayo)... he stated if I would have had the first surgery there I wouldn't be having the second.... first one with the TURP was done at UW Madison.

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@stoney64

HI, I am Celeste, this summer at the age of 53 i started a journey, sudden, accute flank pain/ radiating to the groin, ER visit #1, ct scan, you have a kidney stone, go home, pass it, it will be painful. OK.. and yes it was, i remember labor, c section, migraine headaches.... but Kidney stone pain...ohhhh my. So we get 70 characters.. first emergency surgery 6 days later, 2 days later, more pain, found two more stones, tried passing one of them it got stuck, 2nd surgery, went 1 month had first lithotripsy, blasted the one left in kidney, 6 wk post op..ct another one, had 2nd lithotripsy yesterday! Had 24 uranalysis done, no results yet.....looked up many possible reasons, preventions, etc, i have started drinking more water only, lowered sodium intake, chocolate, I have a urologist here locally. I am apprehensively trying to stay positive! My faith helps! anyone out there a stoned mess? thanks for viewing

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@stoney64, Good Morning Celeste, and Welcome to Mayo Connect. With my little bit of experience with a kidney stone, I can verify the importance of drinking lots of water. My own stone is gone, and I do not know when it happened. I had no symptoms and it was only noticed because it showed up in a discovered in a CT scan. Since I have a kidney transplant, my doctor had a stone analysis ordered to diagnose the make-up of the stone and to decide if/what kind of treatment might be suggested. In my case, only lots of water (3 L ) daily is my goal.

Here is a discussion where others have talked about their kidney stones - you are welcome to add your comments and questions.
https://connect.mayoclinic.org/discussion/kidney-stones-1/?pg=1#chv4-comment-stream-header

What questions do you have?

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HI, I am Celeste, this summer at the age of 53 i started a journey, sudden, accute flank pain/ radiating to the groin, ER visit #1, ct scan, you have a kidney stone, go home, pass it, it will be painful. OK.. and yes it was, i remember labor, c section, migraine headaches.... but Kidney stone pain...ohhhh my. So we get 70 characters.. first emergency surgery 6 days later, 2 days later, more pain, found two more stones, tried passing one of them it got stuck, 2nd surgery, went 1 month had first lithotripsy, blasted the one left in kidney, 6 wk post op..ct another one, had 2nd lithotripsy yesterday! Had 24 uranalysis done, no results yet.....looked up many possible reasons, preventions, etc, i have started drinking more water only, lowered sodium intake, chocolate, I have a urologist here locally. I am apprehensively trying to stay positive! My faith helps! anyone out there a stoned mess? thanks for viewing

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@stoney64

HI, I am Celeste, this summer at the age of 53 i started a journey, sudden, accute flank pain/ radiating to the groin, ER visit #1, ct scan, you have a kidney stone, go home, pass it, it will be painful. OK.. and yes it was, i remember labor, c section, migraine headaches.... but Kidney stone pain...ohhhh my. So we get 70 characters.. first emergency surgery 6 days later, 2 days later, more pain, found two more stones, tried passing one of them it got stuck, 2nd surgery, went 1 month had first lithotripsy, blasted the one left in kidney, 6 wk post op..ct another one, had 2nd lithotripsy yesterday! Had 24 uranalysis done, no results yet.....looked up many possible reasons, preventions, etc, i have started drinking more water only, lowered sodium intake, chocolate, I have a urologist here locally. I am apprehensively trying to stay positive! My faith helps! anyone out there a stoned mess? thanks for viewing

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Hi @stoney64, I add my welcome to Rosemary's. You'll notice that I moved your message to this existing discussion about kidney stones where you can meet others like @waterboy @caont10 @wendyw @ella2000 and others.

This video explains how you can get blood and urine analysis to discover what food may be contributing to your kidney stone production.
https://www.youtube.com/watch?v=QZwOxEY_rYY

More advice from Harvard medicine "5 steps for preventing kidney stones" https://www.health.harvard.edu/blog/5-steps-for-preventing-kidney-stones-201310046721

I, unfortunately, have to avoid things I love like tea, chocolate, beets and spinach. I really miss tea. I also put reminders on my phone to get up and move. I work long hours in front of a computer. While I exercise regularly, it is also important to get up from my desk at least once an hour and move. I also started using a standing desk. Like @rosemarya, I aim to drink 3 liters a day, which isn't easy.

What tricks do you do to drink more?

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@dlarryd

I have two stones ready to come out and torment me ... how do I get to a point of not having these problems? Experienced two bouts of stones so far. want to prevent any more. How do I do it? Are there any Mayo people who are experienced with this condition? Where are they located?

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My husband had 2 stones. His Doctor recommended either surgery which has a 100% chance of getting rid of them or a less invasive procedure that breaks them up so you can pass them. It has 50-75% chance. He is trying to decide what to do. Has anyone else had either of these procedures?

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@nancye3

My husband had 2 stones. His Doctor recommended either surgery which has a 100% chance of getting rid of them or a less invasive procedure that breaks them up so you can pass them. It has 50-75% chance. He is trying to decide what to do. Has anyone else had either of these procedures?

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I have talked to a few who have done both of those choices with success. My own take is surgery has more chances of problems than the break m up procedure.

You still have the issue that I posed, what causes them and how do you prevent more from re-occurring? From my reading and talking the first need is to stay hydrated all the time. I also am including 3 Fl oz of lemon juice in my water each day.

Please keep me in the loop if you have any success finding a health care person savy and up to speed on stones. We use Wisc and Minnesota services.

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I have two stones ready to come out and torment me ... how do I get to a point of not having these problems? Experienced two bouts of stones so far. want to prevent any more. How do I do it? Are there any Mayo people who are experienced with this condition? Where are they located?

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@dlarryd and @nancye3, I merged your discussion with this existing discussion about kidney stones in the Kidney & Bladder group. I did this so you can read previous messages and meet others who have dealt with kidney stones like @gman007 @charlena @ella2000 @wendyw @caont10 @waterboy @rosemarya and others. Click VIEW & REPLY to see all the messages.

DLarry, you'll find Mayo experts who treat kidney stones listed here: https://www.mayoclinic.org/diseases-conditions/kidney-stones/doctors-departments/ddc-20355760

Nancy, you might find this video helpful.
https://www.youtube.com/watch?v=nnIXmxVLCec

Hydration is key. I strive to drink 3+ liters of water daily and often add lemon juice. I don't want to have to go through that again. So far so good.

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My husband has been diagnosed with 2 kidney stones. The one on top is a 4 in size and the one on the bottom a 6. He had an appointment with a urologist a few days ago. He thought my husband should have a ureterscopy surgery with a stint inserted to get rid of the stones. He also mentioned lithotripsy. He said the second procedure had a 50-75% chance of getting rid of them and was less invasive than the ureteroscophy which has a 100% chance to remove them. Has anyone had either procedure and what was your recuperation like?
Thank You,
Nancy

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