1. < Polymyalgia Rheumatica (PMR)

Kevzara (sarilumab) to treat PMR

Posted by hfoster @hfoster, Oct 11, 2022

I am 54, diagnosed with PMR June 2022 but symptoms started Nov 2021. I have tapered Pred to 8mg and most days my pain is around a 2 or 3 out of 10. Reasonable, I felt for active PMR and I'll take Tylenol Arthritis to help with pain if needed. But, my Rheumatologist wants me off Pred ASAP. He wants me to take Kevzara and says studies have shown that it gets rid of PMR and the drug should be approved to treat PMR by this spring. Has anyone been part of the trials and/or had experience using this drug to treat PMR?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

evita | @evita | Aug 23 7:54am
In reply to @jlo2252 "@2young4pmr Welcome to the PMR support group! We are here to help and listen to all..." + (show)
@jlo2252

@2young4pmr
Welcome to the PMR support group!
We are here to help and listen to all of your PMR questions….
It may be unusual, but not unheard of to get PMR at the age of 43. Auto immune disorders don’t seem to have a age limit.
I was diagnosed with reactive arthritis at the age of 23. This particular condition usually occurs in young men 98% of the time. I was in the 2% female category!
At the time I was working in a doctors office, married with an 18 month old son! It was a little over a year before I could physically go back to work (this time working in a hospital). The one good thing is that it went into remission for 20 years! I now get occasional flare ups that are certainly not as bad as the original.
PMR came along at the age of 72. I’ve had my ups and downs, but this group has certainly been a wealth of information and support.
What kind of treatment are you getting and is it helping with your pain?

Jump to this post

Hola a mi me diagnosticaron con PMR y osteoartritis hace cuatro años me mandaron prednisona y me alivio despues la prednisona le afecto el estomago y me dio cataratas me mandaron las inyecciones de actemra tuve ese tratamiento casi un año como no me aliviaba los dolores deje de inyectarme ahora mi reumatologo me mando kevzara llevo 9 inyecciones que me he puesto y no siento nada de alivio es horrible estos dolores vamos a ver que se podra hacer

REPLY
jlo2252 | @jlo2252 | Aug 24 6:34am
In reply to @nativeoregirl "Yes, Methlttexate does have so many risks. They want me to take it instead of my..." + (show)
@nativeoregirl

Yes, Methlttexate does have so many risks. They want me to take it instead of my pain medication and sorry I am not willing to give up what works just because of the Opiod Crises. Many people do well on Hydrocodone and I am one who does have any issues except DR’s all but for forcing me off. Doctors are trying to force patients off something onto something in my opinion could be more dangerous. No one can dictate you need to suffer. I’m my best advocate for sure.

Jump to this post

@nativeoregirl
Hello! I know what you mean about us suffering because of the “opioid crisis”!!
Doctors have already decreased my dose by one pill (from 4 to 3 of Percocet). I used to take hydrocodone, , but it was not working as well for me when I broke my kneecap and had to have surgery!
I already had PMR, so when the pain from my surgery stopped I still continued with the Percocet—-that’s when doctors were starting to force everyone off opioids
My body has adjusted to the lower dose. Sometimes I only take a half pill with a Tylenol 500 rapid release gelcap and this gives me some relief . I’m also under the care of pain management doctors and they are the ones who approved the half pill (as long as you are not taking a extended , long release tablet) my tablet is short acting , half a pill will last 4 to 6 hours.

REPLY
View MoreView Less
Please sign in or register to post a reply.