1. < Chronic Pain

Ketamine for chronic pain

Posted by ckeys @ckeys, Sep 3, 2019

My pain doctor recently prescribed ketamine as an adjunct to my pain management. Has anyone had experience with this? It has to be compounded and you inhale it through a nose spray. Since it’s compounded there is not much info on side effects so I’m curious about other’s experiences.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 30, 2021
In reply to @grandma88 "Hello. Has anyone tried Ketamine IV therapy for pain? We're looking into it for my husband...." + (show)
@grandma88

Hello. Has anyone tried Ketamine IV therapy for pain? We're looking into it for my husband. If you've tried the therapy, what was your experience?

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Hi Racox, welcome. I see that you're looking to connect with others who have experience with ketamine IV therapy to help with pain management. You'll notice that I moved your question to this existing discussion about ketamine for pain where you can connect with other members like @ckeys @mandrake70 @teetee7 @faithwalker007 and more.

What pain issues is your husband dealing with?

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2 replies
Sheryl | @grandma88 | May 31, 2021
In reply to @colleenyoung "Hi Racox, welcome. I see that you're looking to connect with others who have experience with..." + (show)
@colleenyoung

Hi Racox, welcome. I see that you're looking to connect with others who have experience with ketamine IV therapy to help with pain management. You'll notice that I moved your question to this existing discussion about ketamine for pain where you can connect with other members like @ckeys @mandrake70 @teetee7 @faithwalker007 and more.

What pain issues is your husband dealing with?

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Thank you very much!

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jenatsky | @jenatsky | May 31, 2021

Have you tried transdermal buprenorphine? It’s pretty amazing stuff I feel. You can read up on it here https://academic.oup.com/bja/article-abstract/110/6/1010/245725

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Sheryl | @grandma88 | May 31, 2021
In reply to @colleenyoung "Hi Racox, welcome. I see that you're looking to connect with others who have experience with..." + (show)
@colleenyoung

Hi Racox, welcome. I see that you're looking to connect with others who have experience with ketamine IV therapy to help with pain management. You'll notice that I moved your question to this existing discussion about ketamine for pain where you can connect with other members like @ckeys @mandrake70 @teetee7 @faithwalker007 and more.

What pain issues is your husband dealing with?

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Hello Colleen, My husband has been dealing with New Daily Persistent Headache (diagnosed by the Mayo Clinic) for 20 years. The "trauma" which started it all was extensive ear surgery which lasted several hours.

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athenalee | @athenalee | Aug 2, 2021

Research on the safety and benefits of ketamine:

Sublingual Ketamine Safe and Effective for Management of Chronic Nonmalignant Pain
By Lauren Biscaldi Publish Date July 30, 2021

https://www.rheumatologyadvisor.com/home/topics/pain-management/ketamine-lozenges-troches-safe-effective-chronic-noncancer-pain-reduced-opioid-use/
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carpediem7 | @carpediem7 | Apr 20, 2022
In reply to @teetee7 "Hello to all! I wanted to share a little of my Ketamine experiences. I was prescribed..." + (show)
@teetee7

Hello to all! I wanted to share a little of my Ketamine experiences. I was prescribed the Ketamine nasal spray (compounded at an apothecary) over 3 years ago. It is mild and it takes a little while to "build up" in your system. It seems to take the edge off the beginning stages of a migraine and also takes the edge off of my Small Fiber Neuropathy. I haven't had any bad side effects with the nasal spray. You will start off at a couple of sprays a day and then you gradually titrate yourself up, to more sprays a day, not exceeding the dosage you are prescribed.

I just started the Ketamine Infusions, in April of this year, for my chronic pain and widespread neuropathy. They are nothing like the Ketamine nasal spray - no comparison whatsoever. I am prescribed the Ketamine Infusions from my pain management doctor and my Neurologist approved of them, as well. I first started with 3 infusions on a Monday, Wednesday and Friday (every other day for the first 3 infusions). After the first three infusions, you will go by how well your body responds to them and how long it takes for your pain to return. Once your pain starts to come back (usually 2 weeks or more after your 3rd infusion), you then go back and receive a "booster" infusion. The relief can last well beyond 2 weeks and you then return for any "booster" infusions. For chronic pain and Neuropathy, the infusions are 2 hours long. You will need a driver to take you home after each infusion. I hope this sheds a little light for everyone. Best wishes to everyone. I hope to post again, real soon!

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TeeTee, may I ask what city you live in— and where you got your treatments? I’m almost afraid to hope. Did your insurance cover it? Thank you.

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2 replies
mikaylar | @mikaylar | Apr 21, 2022
In reply to @carpediem7 "TeeTee, may I ask what city you live in— and where you got your treatments? I’m..." + (show)
@carpediem7

TeeTee, may I ask what city you live in— and where you got your treatments? I’m almost afraid to hope. Did your insurance cover it? Thank you.

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I have Ketamine nose spray but it did nothing for my NDPH. Doctor wants me to do in-patient IV of it for 5 days but I refused. I'm 75 and I don't want the side effects. A friend did it and she said the hallucinations were awful. Plus, it's not permanent. Insurance will pay after your co-pays i think,
Mikayla

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2 replies
mlmchem1 | @mlmchem1 | Apr 22, 2022
In reply to @mikaylar "I have Ketamine nose spray but it did nothing for my NDPH. Doctor wants me to..." + (show)
@mikaylar

I have Ketamine nose spray but it did nothing for my NDPH. Doctor wants me to do in-patient IV of it for 5 days but I refused. I'm 75 and I don't want the side effects. A friend did it and she said the hallucinations were awful. Plus, it's not permanent. Insurance will pay after your co-pays i think,
Mikayla

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I had ketamine while doctors tried to straighten up my ankle ( dislocated and broken in 3 places). It was awful. The hallucinations were as bad as the pain. I'm 67 and this was 2 years ago.

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Sheryl | @grandma88 | Apr 22, 2022
In reply to @mikaylar "I have Ketamine nose spray but it did nothing for my NDPH. Doctor wants me to..." + (show)
@mikaylar

I have Ketamine nose spray but it did nothing for my NDPH. Doctor wants me to do in-patient IV of it for 5 days but I refused. I'm 75 and I don't want the side effects. A friend did it and she said the hallucinations were awful. Plus, it's not permanent. Insurance will pay after your co-pays i think,
Mikayla

Jump to this post

My husband tried out-patient Ketamine treatments (4 days with 4 hour treatments each day) for his NDPH last year. He didn't feel any pain while on the treatment, but afterwards it was back to the normal pain.

I understand that some people to have good results with the treatment though.

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1 reply
irr4et | @irr4et | Apr 22, 2022
In reply to @carpediem7 "TeeTee, may I ask what city you live in— and where you got your treatments? I’m..." + (show)
@carpediem7

TeeTee, may I ask what city you live in— and where you got your treatments? I’m almost afraid to hope. Did your insurance cover it? Thank you.

Jump to this post

I would like to ask what state you are in after an infusion - loopy? Can u walk or do u require a wheelchair or walker? How long after tye infusion do u feel like eating something? What laxative did you find suited you best? TU

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