Ketamine for chronic pain

Posted by ckeys @ckeys, Tue, Sep 3 12:08am

My pain doctor recently prescribed ketamine as an adjunct to my pain management. Has anyone had experience with this? It has to be compounded and you inhale it through a nose spray. Since it’s compounded there is not much info on side effects so I’m curious about other’s experiences.

Liked by teetee7

Hello @ckeys, I'd like to invite a few members who have mentioned using ketamine to this discussion to share their experiences with this prescription. @jdrhoads, @overwhelmed, @mandrake70, @hopeful123, and @deadpoets have discussed using ketamine in the past, albeit for some different diagnoses and they may be able to share their experience with the prescription.

@ckeys, did your provider have any insight on the potential side-effects? Many members have discussed ketamine as an adjunct to their mental health or depression treatments, and some for neuropathy pain as well.

Liked by teetee7, ailean55

REPLY

I went with the IV ketamine treatment so I haven't used the nasal spray. From what I understand, the nasal spray just uses the S molecule of ketamine while the IV uses S and R. I used it as a treatment for my depression, not for pain though. I was told for the six sessions that I went to that the side effects are during the treatment, not after. I am heading in for another session tomorrow sort of as a 'booster' since my depression is coming back. I had been told that would happen within a few weeks and that I would need another session. The time between sessions is supposed to get longer and longer for preventing depression. My cousin hasn't been back for another session in over a year.
Good luck with the treatments for your pain.

REPLY

@JustinMcClanahan Of course my provider talked about some things to expect, but without the typical insert you get with prescriptions, I am interested in personal experiences. Thank you!

Liked by teetee7, ailean55

REPLY

My pain specialist wants to prescribe Ketamine orally for me for my CRPS (type 2.) I've discussed it with my neurologists and they don't believe it will be effective and I'm a high risk due to my Seizure Disorder and migraines. It may "help" or not either one of those at the risk of sending their controlled status out of whack as well.
I really don't know what to do. Both neurologists recommend IV ketamine for CRPS especially since I am progressing, but no other method.

Liked by teetee7

REPLY

Can you buy Ketamine over the counter? In the vitamins & minerals section? Peggy

REPLY

No you need to have a doctors prescription and it needs to be compounded for a nose spray or an infusion

Liked by teetee7

REPLY

Thank you – I'll ask my pain doctor about it. Peggy

Liked by teetee7

REPLY
@pfbacon

Thank you – I'll ask my pain doctor about it. Peggy

Jump to this post

whst is katamine? is it like percocet?
does it helo netve psin? What are the sidee effrcts?

Liked by teetee7

REPLY

nerve pain

Liked by teetee7

REPLY

I'll see my pain doctor on Thursday. I chickened out of the tens stim trial thing. Too much prep time and recovery time and it might not work — and, my insurance company won't pay for it – it would be at least 2 hospital procedures this year, maybe more. I might just let nature take its course. Nothing wrong with that. Peggy

Liked by teetee7

REPLY

Hello to all! I wanted to share a little of my Ketamine experiences. I was prescribed the Ketamine nasal spray (compounded at an apothecary) over 3 years ago. It is mild and it takes a little while to "build up" in your system. It seems to take the edge off the beginning stages of a migraine and also takes the edge off of my Small Fiber Neuropathy. I haven't had any bad side effects with the nasal spray. You will start off at a couple of sprays a day and then you gradually titrate yourself up, to more sprays a day, not exceeding the dosage you are prescribed.

I just started the Ketamine Infusions, in April of this year, for my chronic pain and widespread neuropathy. They are nothing like the Ketamine nasal spray – no comparison whatsoever. I am prescribed the Ketamine Infusions from my pain management doctor and my Neurologist approved of them, as well. I first started with 3 infusions on a Monday, Wednesday and Friday (every other day for the first 3 infusions). After the first three infusions, you will go by how well your body responds to them and how long it takes for your pain to return. Once your pain starts to come back (usually 2 weeks or more after your 3rd infusion), you then go back and receive a "booster" infusion. The relief can last well beyond 2 weeks and you then return for any "booster" infusions. For chronic pain and Neuropathy, the infusions are 2 hours long. You will need a driver to take you home after each infusion. I hope this sheds a little light for everyone. Best wishes to everyone. I hope to post again, real soon!

REPLY
@teetee7

Hello to all! I wanted to share a little of my Ketamine experiences. I was prescribed the Ketamine nasal spray (compounded at an apothecary) over 3 years ago. It is mild and it takes a little while to "build up" in your system. It seems to take the edge off the beginning stages of a migraine and also takes the edge off of my Small Fiber Neuropathy. I haven't had any bad side effects with the nasal spray. You will start off at a couple of sprays a day and then you gradually titrate yourself up, to more sprays a day, not exceeding the dosage you are prescribed.

I just started the Ketamine Infusions, in April of this year, for my chronic pain and widespread neuropathy. They are nothing like the Ketamine nasal spray – no comparison whatsoever. I am prescribed the Ketamine Infusions from my pain management doctor and my Neurologist approved of them, as well. I first started with 3 infusions on a Monday, Wednesday and Friday (every other day for the first 3 infusions). After the first three infusions, you will go by how well your body responds to them and how long it takes for your pain to return. Once your pain starts to come back (usually 2 weeks or more after your 3rd infusion), you then go back and receive a "booster" infusion. The relief can last well beyond 2 weeks and you then return for any "booster" infusions. For chronic pain and Neuropathy, the infusions are 2 hours long. You will need a driver to take you home after each infusion. I hope this sheds a little light for everyone. Best wishes to everyone. I hope to post again, real soon!

Jump to this post

Fantastic that you're getting relief! I just asked my neurologist about the infusions and I was told insurance doesn't cover them (in my area) and I could go to a Ketamine Center locally and pay out of pocket. Do you mind me asking how it works for you?

Liked by teetee7

REPLY
@teetee7

Hello to all! I wanted to share a little of my Ketamine experiences. I was prescribed the Ketamine nasal spray (compounded at an apothecary) over 3 years ago. It is mild and it takes a little while to "build up" in your system. It seems to take the edge off the beginning stages of a migraine and also takes the edge off of my Small Fiber Neuropathy. I haven't had any bad side effects with the nasal spray. You will start off at a couple of sprays a day and then you gradually titrate yourself up, to more sprays a day, not exceeding the dosage you are prescribed.

I just started the Ketamine Infusions, in April of this year, for my chronic pain and widespread neuropathy. They are nothing like the Ketamine nasal spray – no comparison whatsoever. I am prescribed the Ketamine Infusions from my pain management doctor and my Neurologist approved of them, as well. I first started with 3 infusions on a Monday, Wednesday and Friday (every other day for the first 3 infusions). After the first three infusions, you will go by how well your body responds to them and how long it takes for your pain to return. Once your pain starts to come back (usually 2 weeks or more after your 3rd infusion), you then go back and receive a "booster" infusion. The relief can last well beyond 2 weeks and you then return for any "booster" infusions. For chronic pain and Neuropathy, the infusions are 2 hours long. You will need a driver to take you home after each infusion. I hope this sheds a little light for everyone. Best wishes to everyone. I hope to post again, real soon!

Jump to this post

Thank you teetee. The procedure part sounds a bit like chemotherapy but with a different medicine. I've never heard of a Ketamine Center but I will ask around. It's probably too far away and too much recovery time but I will ask my pain doctor any way. Peggy

Liked by teetee7

REPLY
@rwinney

Fantastic that you're getting relief! I just asked my neurologist about the infusions and I was told insurance doesn't cover them (in my area) and I could go to a Ketamine Center locally and pay out of pocket. Do you mind me asking how it works for you?

Jump to this post

Hi @rwinney ! Thank you so much. I have had a lot of relief with the Ketamine Infusions. After my first infusion, I was able to get out of my wheelchair and start using my walker again. (I had a rough 2 years before being diagnosed with Autonomic Neuropathy. I get a lot of fainting sensations along with Orthostatic Hypotension, etc.). The infusions truly work well in reducing my chronic pain, inflammation, neuropathy and headaches. Absolutely amazing. I never thought I could ever feel relief, like I do after an infusion. The "booster" infusions I get are either 3 weeks apart or 5 weeks apart, now.

My insurance does not cover the cost for these infusions. Like you said, I don't believe insurance covers these yet since the FDA hasn't approved these infusions for chronic pain and/or neuropathy. I live in Arizona and we have several Ketamine centers here. Whenever I need a "booster", I call the day before I want to go and they fit me right in. It's a very well organized office with very caring and knowledgeable doctors. There have been 2 times where an infusion didn't take as well as my other infusions. The relief I generally get, is just phenomenal. I have been able to reduce and/or wean off of a couple of my medications, due to the relief these infusions bring to me. The infusions are pricey – $400 for each infusion (this is a good price, many other places can cost $1,000). This includes the cost for any anti-anxiety med, nausea med and nasal oxygen they give you. I still can't believe the relief I get, after every infusion. My doctors are truly delighted and a bit in awe, lol. I was in bad shape and have been for over 10 years. I am slowly rebuilding my core muscles and other muscles that atrophied. Just incredible. I hope this helps!

Liked by lasirvent, rwinney

REPLY
@pfbacon

Thank you teetee. The procedure part sounds a bit like chemotherapy but with a different medicine. I've never heard of a Ketamine Center but I will ask around. It's probably too far away and too much recovery time but I will ask my pain doctor any way. Peggy

Jump to this post

Hi @pfbacon ! I wanted to mention that the Ketamine place I go to, is all outpatient. I am generally there for a total of 3 hours – 15 minutes to prep me, 2 hour infusion, 45 minute recovery time. I sit in a very comfy recliner, they dim the lights and continually monitor me. I have heard of people being admitted into a hospital for Ketamine Infusions, but I don't know anything about those.

REPLY
Please login or register to post a reply.