Keep Getting Covid (8 Confirmed) and Long Covid Symptoms

Posted by dand63 @dandoss63, Oct 10, 2023

I am a 60 year old male and was in healthy condition, with exception to having IGA (mono as a teenager). My original Covid diagnosis was on December 2, 2021. Approximately 8 months after my 2 Pfizer vaccines. I got an experimental intravenous infusion, he recommended. I quickly relapsed at the end of that month. I've dealt with extreme lack of energy and endurance and a great deal of brain fog ever since. These symptoms have never went away even though I have been an endurance athlete for several decades. I have tested positive 8 times since my original diagnosis. Each time my symptoms vary. The only constant in symptoms is that I have a low grade fever and a headache and almost zero energy each time I get it. In most of these occurrences I get normal cold like symptoms as well. My work has allowed for me to work part time but I lost all health benefits. I moved to my wifes health plan. Finding it harder to work as my job requires a great deal of mental acquity. Would anyone have any insight as to why I keep getting Covid and never fully recover?

I forgot to mention, ever since getting Covid, my endocrine system has completely flaked out. Starting with thyroid going from overactive to under active. Later learned that my adrenal glands are pretty much shot. I produce almost no cortisol. My functional medicine doctor has me on Low Dose Naltrexone. At least my thyroid is staying in check on this. Adrenal glands, not yet.

Thanks, Dan, Kansas City, MO

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Last confirmed positive Covid test was 10/3/2023.

REPLY

Wow, I don't really have a clue-- really sorry about that.

Paxlovid helped me a lot. Maybe give it a try, if you haven't already.

I recently saw a podcast from the American Medical Association during which a doctor (from Yale?) said it's really important NOT to over-do physical and mental activity. Something they are calling post-exertion malaise, I think. Typical physical and mental activities-- that usually would increase endurance in healthy people-- are actually too strenuous for Covid patients.

When my husband and I both had Covid in 2020, we thought we were relapsing when we were probably over-doing activities as soon as we felt a little better. The podcast information corresponds to our experience at least.

Post exertion malaise does apply to mental activities, too. I've heard more about the physical exertion side than the mental.

If you have the money, maybe pay for everything you can. Like, get prepared meals and groceries delivered; get laundry done at laundromat; get a house cleaner, dog walker, etc. That way you can make room for more rest for yourself and more room for your wife to pick up your mental activities and so she doesn't get burnt out. Maybe you can afford it for a few months?

Apparently, you have to take the tiniest of baby steps forward to make progress and to avoid regressing.

One great resource for me was the nurse from my health insurance company-- who would have thought the company would actually help? The nurse might be able to take over some of your thinking and researching about health issues.

Best wishes,
Anne

REPLY
@annewoodmayo

Wow, I don't really have a clue-- really sorry about that.

Paxlovid helped me a lot. Maybe give it a try, if you haven't already.

I recently saw a podcast from the American Medical Association during which a doctor (from Yale?) said it's really important NOT to over-do physical and mental activity. Something they are calling post-exertion malaise, I think. Typical physical and mental activities-- that usually would increase endurance in healthy people-- are actually too strenuous for Covid patients.

When my husband and I both had Covid in 2020, we thought we were relapsing when we were probably over-doing activities as soon as we felt a little better. The podcast information corresponds to our experience at least.

Post exertion malaise does apply to mental activities, too. I've heard more about the physical exertion side than the mental.

If you have the money, maybe pay for everything you can. Like, get prepared meals and groceries delivered; get laundry done at laundromat; get a house cleaner, dog walker, etc. That way you can make room for more rest for yourself and more room for your wife to pick up your mental activities and so she doesn't get burnt out. Maybe you can afford it for a few months?

Apparently, you have to take the tiniest of baby steps forward to make progress and to avoid regressing.

One great resource for me was the nurse from my health insurance company-- who would have thought the company would actually help? The nurse might be able to take over some of your thinking and researching about health issues.

Best wishes,
Anne

Jump to this post

Thanks, Anne for responding. One of my doctors has told me to go easy on exertion, mental and physical. She even recommended that I take several months off work. That is where I convinced her that going part time may help; not sure it is helping. I used to be a competitive bicycle racer as well as a marathon runner. I now can barely ride over 20 miles and at a very slow pace compared to how I used to ride. I'm really struggling with my lack of ability to do much of anything.

REPLY
@dandoss63

Thanks, Anne for responding. One of my doctors has told me to go easy on exertion, mental and physical. She even recommended that I take several months off work. That is where I convinced her that going part time may help; not sure it is helping. I used to be a competitive bicycle racer as well as a marathon runner. I now can barely ride over 20 miles and at a very slow pace compared to how I used to ride. I'm really struggling with my lack of ability to do much of anything.

Jump to this post

I'm 69 and got covid in March on a 7-day 350 mi bike tour. I got a double cytokine storm from getting glutened (celiac) and covid exposure the same day (a cyclist had covid and shared it with us). I averaged ~6000 mi/year on my bikes. My long covid (LC) is gradually decreasing (ups and downs) and I manage it by short rides (5 to 10 mi max) with rests between, taking walks, lifting weights (non aerobic doesn't seem to hit LC), managing stress and getting enough sleep are critical, and slowly ramping up mental and physical activity on the good days. My hypothyroidism also worsened; getting a synthroid increase helped a bit. Once the LC goes away (optimism) ramping up my exercise will be hard, but so is any training. It almost sounds like your immune system was torqued and can't quite rid you of the covid nasty bits. You might consider a log of your meals, in case any food groups worsen your symptoms. My celiac was triggered 14 years ago after catching H1N1 so for me it is gluten and NSAIDs. It is tough going from century to decade rides.

REPLY
@kayabbott

I'm 69 and got covid in March on a 7-day 350 mi bike tour. I got a double cytokine storm from getting glutened (celiac) and covid exposure the same day (a cyclist had covid and shared it with us). I averaged ~6000 mi/year on my bikes. My long covid (LC) is gradually decreasing (ups and downs) and I manage it by short rides (5 to 10 mi max) with rests between, taking walks, lifting weights (non aerobic doesn't seem to hit LC), managing stress and getting enough sleep are critical, and slowly ramping up mental and physical activity on the good days. My hypothyroidism also worsened; getting a synthroid increase helped a bit. Once the LC goes away (optimism) ramping up my exercise will be hard, but so is any training. It almost sounds like your immune system was torqued and can't quite rid you of the covid nasty bits. You might consider a log of your meals, in case any food groups worsen your symptoms. My celiac was triggered 14 years ago after catching H1N1 so for me it is gluten and NSAIDs. It is tough going from century to decade rides.

Jump to this post

I agree about considering eliminating antiinflammatory foods. I was led to eliminate gluten first. That change in diet eliminated the bloating that I had post Covid. I also reduced my sugar intake as well as dairy.

REPLY
@kayabbott

I'm 69 and got covid in March on a 7-day 350 mi bike tour. I got a double cytokine storm from getting glutened (celiac) and covid exposure the same day (a cyclist had covid and shared it with us). I averaged ~6000 mi/year on my bikes. My long covid (LC) is gradually decreasing (ups and downs) and I manage it by short rides (5 to 10 mi max) with rests between, taking walks, lifting weights (non aerobic doesn't seem to hit LC), managing stress and getting enough sleep are critical, and slowly ramping up mental and physical activity on the good days. My hypothyroidism also worsened; getting a synthroid increase helped a bit. Once the LC goes away (optimism) ramping up my exercise will be hard, but so is any training. It almost sounds like your immune system was torqued and can't quite rid you of the covid nasty bits. You might consider a log of your meals, in case any food groups worsen your symptoms. My celiac was triggered 14 years ago after catching H1N1 so for me it is gluten and NSAIDs. It is tough going from century to decade rides.

Jump to this post

I was restricting gluten, per recommendation from my functional medicine doctor. Sugar and processed foods as well. I went to Florida a month ago for a week and a standard American diet (gluten and sugar). I also logged almost 200 miles that week on a bicycle. Lucky me, got Covid again shortly after returning home. I've recently started a restriction diet (keto/carnivore). Once I'm healthy enough to start doing stuff again I will try your recommendation of short/easy rides, maybe one or two a week to start.
Thank you for this advice.

REPLY

I’m from KCMO too! Go Chiefs!

REPLY
@dandoss63

I was restricting gluten, per recommendation from my functional medicine doctor. Sugar and processed foods as well. I went to Florida a month ago for a week and a standard American diet (gluten and sugar). I also logged almost 200 miles that week on a bicycle. Lucky me, got Covid again shortly after returning home. I've recently started a restriction diet (keto/carnivore). Once I'm healthy enough to start doing stuff again I will try your recommendation of short/easy rides, maybe one or two a week to start.
Thank you for this advice.

Jump to this post

Covid is an evil disease that hits everyone differently. The most I've gotten since March is 90 mi on my Mtn bike; thankfully covid didn't hit my lungs cuz I'm at high elevation. I hope you recover quickly, but the virus tasks us. Any escape is good. I recommend dark chocolate, but I recommend that for everything. I had to cut out alcohol because one drink tired me out.

REPLY

My experience with energy is the same. I've tried with increasing success various things. Your functional medicine doctor should be able to get your adrenals and thyroid back on track. These were not issues for me, but my FM MD tested me for viral reactivations, and I have them: Epstein Barr, Herpes 6, maybe Lyme (though that is inconclusive and I have no memory of having it). Yeast. He also tested me for mold and voila! I'm doing a detox right now with gi detox and biocidin and various supplements. We're trying valacyclovir now for the EBV. I can cautiously say that after a month of this protocol I have some more energy. I also take LDN, ketotifen at night and did take melatonin which is good for LC. You may have mast cell activation. That would explain a lot, so a low to medium histamine diet can help. And LOTS of water, including enough electrolytes (I drink 100 ozs a day). I'm also doing the GUpta program of amygdala retraining for chronic illnesses. The mind is very powerful. What has been stunningly helpful is polyvagal work with a coach using the Safe and Sound protocol based upon the work of Dr. Stephen Porges on the vagus nerve. It cured my POTS. Best to you.

REPLY
@kayabbott

I'm 69 and got covid in March on a 7-day 350 mi bike tour. I got a double cytokine storm from getting glutened (celiac) and covid exposure the same day (a cyclist had covid and shared it with us). I averaged ~6000 mi/year on my bikes. My long covid (LC) is gradually decreasing (ups and downs) and I manage it by short rides (5 to 10 mi max) with rests between, taking walks, lifting weights (non aerobic doesn't seem to hit LC), managing stress and getting enough sleep are critical, and slowly ramping up mental and physical activity on the good days. My hypothyroidism also worsened; getting a synthroid increase helped a bit. Once the LC goes away (optimism) ramping up my exercise will be hard, but so is any training. It almost sounds like your immune system was torqued and can't quite rid you of the covid nasty bits. You might consider a log of your meals, in case any food groups worsen your symptoms. My celiac was triggered 14 years ago after catching H1N1 so for me it is gluten and NSAIDs. It is tough going from century to decade rides.

Jump to this post

Diet is central. I was vegan; came back onto fish and some meat as soy and legumes are high histamine. But after one year of this terrible disease, I'm heading back to vegan. And I'm doing sprouting. Lots of nutrients there.

REPLY
Please sign in or register to post a reply.