Kappa/Lambda now 75, PET scan then likely I-VRD for 4 mo

Posted by kayabbott @kayabbott, 6 hours ago

My 10 years of IgA Kappa MGUS started ramping up 3 years ago. I get a whole body PET scan and repeat of my bloodwork in 7 weeks. I likely will have 4 mo of I-VRD chemo, and maybe a BMT with my stem cells. I'm 71 and have stage 3b CKD (evil norovirus 2 yrs ago). How hard physically is the I-VRD? Pre norovirus I biked ~150 mi/week and that is no more. Does the I-VRD leave pockets of time in which one can feel normal, or are you always tired? Unfortunately my friends baled on me 16 years ago when I got celiac (me ordering gluten free got on their nerves). I do have my husband and some other friends for support, but afraid of alienating them by being ill. For those of you going through all this, I wish I could provide emotional support cuz it is tough. Thanks for any input.

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