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← Return to Kappa/Lambda now 75, PET scan then likely I-VRD for 4 mo
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Kappa/Lambda now 75, PET scan then likely I-VRD for 4 mo
Blood Cancers & Disorders | Last Active: Jan 19 2:10pm | Replies (6)Comment receiving replies
@loribmt Thank you and others for the wonderful sharing of your experiences. Once I pass through the belly of the beast (OK, not a great analogy for chemo) then I hope to share mine as well. My PET and bloodwork is March 9th because my MM specialist wanted to make sure the K and other numbers were not false positives. I have no CRAB symptoms, but my BMB last summer had +16% deranged cells and an SMM or MM diagnosis. I am also IgA Kappa SMM and have the 1q21 mutation that puts me at higher risk. I suspect that the I-VRD will proceed, sometime after the PET. The yogurt and flax are great suggestions. I'm freezing soups and such now. Some of my friends will be there, but others not. My husband is on radiation/hormone for prostate cancer that has spread; only a few have asked how he is doing, and no one has asked me how I am. One said "I guess you will get to find out what it is like when a spouse dies"; she has a bad mean streak. We do get to find out who is there for us. Hubby is almost through treatment so he will be there with hugs (and cleaning bathrooms...laundry...).
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@kayabbott ohh my ‘lanta, Kay. @mascot summed it up in their response…”You will sort these friends out of your radius.” Truth. I found out who my true friends were too, and hadn’t even asked them for help. The true peeps will be there for you!
Gosh, I’m sorry to hear your husband is going through his own medical odyssey. When it rains it pours or whatever the old saw is.
I know you appreciate information so here is the transplantation tutorial from Mayo. Follow for Autologous transplant. There’s a ton of info on here for nutrition, caregivers, infection control, that type of thing. https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/transplant-journey/
And please know that you are NEVER alone here in Connect. I’m here for you anytime along with so many of us for moral support, info, a sounding board, whatever you need! You can PM also if you feel the need.
If I may, try not to focus on what’s ahead. It’s fine to prep meals, slowly get the house ready, etc.. But don’t make this your sole focal point. Keep living and enjoying each day. You’ll get through the chemo and transplant just as you do any illness…one day at a time. Memory dulls the worst of it and you simply move forward. Let me know what I can do for you…