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Kappa light chain is elevated: Anyone dealing with this?

Posted by bettersleep68 @bettersleep68, Aug 28, 2023

Just found out my kappa light chain is elevated....I am worried ....anyone else dealing with this?

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jojs | @jojs | Nov 27 7:43pm
In reply to @amyboylan1 "I have an elevated Kappa number and a ratio. I also have a slightly elevated m..." + (show)
@amyboylan1

I have an elevated Kappa number and a ratio. I also have a slightly elevated m spike. I notice have been having balance problems

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Hi,
I have high Kappa 2.62 and high kappa/lambda ratio 1.94. My last blood work was 2 weeks ago, and now says I have IgM lambda protein present in serum, but does not say any levels or numbers by it. I went to Mayo in 2022 for cardiomyopathy. They did tests for cardiomyopathy and blood work that caught the high FLC. My Mayo Cardiologist did not think I have MM or amylodosis. I hope they are right. This is scary stuff. So far in my home town they are watching it, and I have blood draws every 6 months.

I hope you continue to get answers you need. It helps to know there are others out there with same findings. Best regards.

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1 reply
amyboylan1 | @amyboylan1 | Nov 27 8:15pm
In reply to @jojs "Hi, I have high Kappa 2.62 and high kappa/lambda ratio 1.94. My last blood work was..." + (show)
@jojs

Hi,
I have high Kappa 2.62 and high kappa/lambda ratio 1.94. My last blood work was 2 weeks ago, and now says I have IgM lambda protein present in serum, but does not say any levels or numbers by it. I went to Mayo in 2022 for cardiomyopathy. They did tests for cardiomyopathy and blood work that caught the high FLC. My Mayo Cardiologist did not think I have MM or amylodosis. I hope they are right. This is scary stuff. So far in my home town they are watching it, and I have blood draws every 6 months.

I hope you continue to get answers you need. It helps to know there are others out there with same findings. Best regards.

Jump to this post

I’m no doctor but your numbers are similar to mine and I was diagnosed with MGUS. I have bloodwork done again in 3 weeks and am having a lot of anxiety

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1 reply
jojs | @jojs | Nov 28 7:27pm
In reply to @amyboylan1 "I’m no doctor but your numbers are similar to mine and I was diagnosed with MGUS...." + (show)
@amyboylan1

I’m no doctor but your numbers are similar to mine and I was diagnosed with MGUS. I have bloodwork done again in 3 weeks and am having a lot of anxiety

Jump to this post

Yes, my hematologist said I am at the very beginning of MM. He said they will watch it with labs. They offered a bone marrow biopsy, but I think I will wait until I see him again in May.

I try to stay focused on my family and have peace with God. I am very thankful that I can be up and about. I can do daily activities. Yes I get tired a lot, and feel "off" but still thankful for being able to function.

Does your MGUS affect you physically? (only if you want to answer)
Keep your chin up. We have much to be thankful for.
🙂

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