Just started on CellCept the side effects are scary

Posted by codered032 @codered032, Oct 10, 2023

My remission lasted less than 2mos! I was in remission after taking Tacrolimus for 2years. All of my labs were normal with no proteinuria. In less than 2mos proteinuria had doubled. My nephrologist is starting me on CellCept. I am very sensitive to all medications and my anxiety is overwhelming. If my MCD doesn’t destroy my kidneys I fear that the side effects from CellCept might be worse. I currently have no chronic medical conditions other than MCD and osteoarthritis. Please share any side effects from taking CellCept.

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izzymeyer | @izzymeyer | 4 days ago

In reply to @codered032 "MCD is a chronic kidney disease that causes elevated proteinuria. Thank you for your support" + (show)

Minimal Change Disorder (MCD)

Cheryl, Volunteer Mentor | @cehunt57 | 3 days ago

In reply to @izzymeyer "Minimal Change Disorder (MCD)" + (show)

There is another discussion started a few days ago by someone who has been prescribed Tacrolimus to treat MCD. This is curious to me since my experience with both Cellcept and Tacrolimus has been for anti rejection / immune suppression after pancreas transplant. Also Tacrolimus is hard on kidneys.