1. < MAC & Bronchiectasis

Just got second CT Scan says probably MAC. I am a K teacher

Posted by aima1234 @aima1234, Aug 24, 2021

Hello all,
I am new to this sight as of reviewing CT scan that read probably MAC. Wow! I am 56 years old. I went to the ER two weeks ago because I was experiencing chest pains and since I had hip surgery a few months back wanted to make sure it wasn't a blood clot. Turns out they think I have this. I can't do. anything until I get this all tested from a pulmonologist and it seems like it will be a wait. Though, I am very assertive so I am going to try to figure this out.

I am a K. public school teacher. When can I go back to work? Are folks able to do all of that stuff. I also teach dance. How will this affect it. I have had other health issues before, including low grade breast cancer. I know things could always be worse.

What are some best things I can do to help myself now while I wait.

THANK YOU.

This is what my radiologist Summaary said: Redemonstration of clustered pulmonary nodules in the lingula (stable from 8/8/2021) and middle lobe (slightly increased). Given the distribution, consider mycobacterial infection such as Mycobacterium avium-intracellulare (MAI), but a wide variety of alternative airways-related infectious or inflammatory processes are also possible.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

extracare808 | @extracare808 | Sep 24, 2021
In reply to @aima1234 "Just heard back from my pulmonologist and I do have mac. She said I have no..." + (show)
@aima1234

Just heard back from my pulmonologist and I do have mac. She said I have no lung damage. Don't know what that means. I sent her an email asking if I also have bronchiectasis. She referred me to the iD in her building. She is in redwood city CA. I usually go to Stanford but when I was really sick and scared last month I took the first pulmonologist who saw me and she is very on time of it with communication and her actions. I researched her referral and no talk of Mac on website or reviews but did just see a doc referral link on this site and ask my pulmonologist to refer me to David Epstein at Stanford and also to do a referral to NJH. My pulmonologist said she has worked with them with some of her patients. I suspect they will put me on meds and I will take 3 times a week. I am on Tamoxifen so a bit scared how this is all going to work.
Big question to you all. My primary doc said she wouldn't get a covid booster if she were me but pulmonary doc has encouraged me to do so. I teach K in CA and have a 14 year old daughter. I think I should ASAP. Anyone out there had experience with getting a booster and having MAC that is untreated with antibiotics. Sorry to bug you all with this journey but so little info and rather scary all the info on the web when you google MAC. Especially mortality. THANKS!

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I understand the the Pfizer booster is the same as the original double vax shots. Meaning, it hasn't been modified specific to the Delta variant. That being the case, I would guess that getting a third shot of what you already had several months ago would not be contraindicated if you have MAC.

I asked my NJH doc about the booster and he did not say I shouldn't get it because I have MAC. He said I may not need to get it if my antibody levels are high enough from my previous two shots. I will be getting a booster as soon as I am eligible.

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