Just Diagnosed Emphysema

Posted by jeanette52 @jeanette52, Oct 19, 2018

Hello…I am a 66 year old female just diagnosed with "predominant upper lobe emphysema" yesterday via CT chest scan (done on 10/17/2018). I was having a year follow-up scan for a perifissural lung nodule (which hasn't changed in 2 years so no more follow-ups). On the last scan there was no mention of emphysema. Right now (and when I had the scan on 10/17/2018) I have an allergic flare-up. Nasal passages completely closed, throat hurts and congestion in right upper lung. This started about 2 months ago when I sneezed all night and then my nose started pouring. Then it totally closed up.Lung congestion apeared about a day later. I only had a cough for the first couple of days then it went away. The nasal and lung congestion are still present. Phlegm in upper throat as well. Since there is no cough I have to hack up the phlegm from my lung. I have made my self pretty sore doing this.The sinus issues are almost overwhelming. I went to my primary care physician on 9/28/2018 and my temp was fine at 97/9, O2 saturation at 99%. Blood pressure 121/70. She listened to my lungs and said she didn't hear anything. I just had blood work done right before that visit that showed my eosinophil % at 6.1. She said that was a little high and to take regular Zyrtec because I had allergies to something. I cannot take decongestants because I have paroxymal AFib. It has done me no good. I cannot get air through my nostrils. The AFib makes it hard to take anything to clear this up. The only thing that seems to help a little is store brand Mucinex. Could these issues have caused it to look like I have emphysema? I am so scared. I am a super anxious person diagnosed the Generalized Anxiety Disorder so you can imagine what seeing this on the test results has done to me!! I will admit that I still smoke…a few a day. I feel so guilty and horrible that I may have hurt myself like this. But my daughter died a year ago (10/21/201) and trying to quit would have been so hard. I am still in horrendous grief and sadness at her loss.

According to the scan it looks as if I have no other lung issues. Could this illness (allergy) have caused some kind of misreading? Maybe asthma?
I would like to not here that I have never had a smoker's cough. Smoked a lot of years, though.

Thanks so much for reading my story and whatever insight you can give.

Jeanette52

Hi, I can relate to your feelings of sadness and feeling guilty about smoking. I also have anxiety like you along with depression and PTSD. I do have small cell lung cancer also.When I was first diagnosed I knew I could beat the cancer, now I am feeling trepidatious. It is the emphesyma that scares me. Please be very assertive when dealing with medical personnel. I have learned to be, but fortunately I go to Mayo for my cancer and have the BEST team there. I absolutely love them. Do you go to a pulmonologist? I think that would be a good start. I look at credentials, opinions, to fine the best I can. And when you consider quitting smoking. Know that it is hard. ANddddd it is doable. I was physically and mentally addicted. I took it minute by minute, till it was hour by hour, then on and on. Now it is 16 years. Yes, I still would like a cigarette. But, for a million reasons, I will never do that. I am so, so sorry about your daughter. I cannot imagine your unbearable pain. You are so brave to even say the words. I admire your fortitude. Know that there is a lot that can be done for emphesyma. I do use inhalers and have gone to PT for it. Try to get into an exercise program. It was help with the anxiety and breathing. Will be thinking of you.

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@olgamarie

Hi, I can relate to your feelings of sadness and feeling guilty about smoking. I also have anxiety like you along with depression and PTSD. I do have small cell lung cancer also.When I was first diagnosed I knew I could beat the cancer, now I am feeling trepidatious. It is the emphesyma that scares me. Please be very assertive when dealing with medical personnel. I have learned to be, but fortunately I go to Mayo for my cancer and have the BEST team there. I absolutely love them. Do you go to a pulmonologist? I think that would be a good start. I look at credentials, opinions, to fine the best I can. And when you consider quitting smoking. Know that it is hard. ANddddd it is doable. I was physically and mentally addicted. I took it minute by minute, till it was hour by hour, then on and on. Now it is 16 years. Yes, I still would like a cigarette. But, for a million reasons, I will never do that. I am so, so sorry about your daughter. I cannot imagine your unbearable pain. You are so brave to even say the words. I admire your fortitude. Know that there is a lot that can be done for emphesyma. I do use inhalers and have gone to PT for it. Try to get into an exercise program. It was help with the anxiety and breathing. Will be thinking of you.

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Hi I have had emphysema for 24 years. I am 77 now. Lost my husband of 57 years in 2016. I live alone now with 3 fur babies. I still do all the things that need to be done around the house accept for snow shoveling or grass cutting. I feel most of us smokers will get copd eventually as we get older because of smoking and all the dirty air we came in contact with over the years. Coal dust, asbestos, gas fumes. Emphysema is slow progression. Try not to get anxious or stressed because it makes things feel worse. Find a Pulmonary Doctor and he will help you figure it out. Carol

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@carolannz

Hi I have had emphysema for 24 years. I am 77 now. Lost my husband of 57 years in 2016. I live alone now with 3 fur babies. I still do all the things that need to be done around the house accept for snow shoveling or grass cutting. I feel most of us smokers will get copd eventually as we get older because of smoking and all the dirty air we came in contact with over the years. Coal dust, asbestos, gas fumes. Emphysema is slow progression. Try not to get anxious or stressed because it makes things feel worse. Find a Pulmonary Doctor and he will help you figure it out. Carol

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Welcome to connect @carolannz. I'd like to bring olgamarie into this discussion. Emphysema is caused by damage to your lung sacs, and is progressive. As long as you continue to smoke Carol your emphysema will continue to progress very quickly. When I was diagnosed with NSCLC it took me about a month to quit smoking after 35 years of inhaling one of the strongest cigarettes available.
Here are some links that Carol might be interested in.
https://www.mayoclinic.org/diseases-conditions/emphysema/symptoms-causes/syc-20355555
For small cell lung cancer olgamarie have you met anyone in the small cell lung cancer group? @lady1lake and @margot please welcome @olgamarie Olgamarie when is your next CT scan?

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Is this a scam at $450.00 for 15 days???

Mayo Clinic Connect
Reply by @nomfundozulu on Mon, Jul 15
I was diagnosed of Emphysema (COPD) in 2017 and I have tried all possible means to get cured, i even visited pulmonologist but all to no avail, until i saw a post in a health forum about a herbal doctor from Africa who prepare herbal medicine to cure all kind of diseases including Emphysema, at first i doubted if it was real but decided to give it a try, when i contacted this herbal doctor via his email he sent me the Emphysema herbal medicine through courier service, when i received this herbal medicine, he gave me step by instructions on how to apply it, when i applied it as instructed i was totally cured of this deadly disease within 12-14 days of usage, if you are suffering of this diseases you can as well

NOTE FROM THE COMMUNITY DIRECTOR
The above message was deleted from the Connect forum. Further investigation has revealed that this is a hoax. Be careful when reading about claims of a cure on the Internet. Be diligent. Do your research. Ask questions as you have done here. Thank you.

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Yes it is….just think if it were true ever major medical center in the US would be offering it. Or maybe Big Pharma has it buried so they can sell us inhalers at .$500 each usually requiring 2 + per month and has no interest in a cure. How can we find out how many have tried this and been cured. My gut tells me its not but given state of medicine and 100's of billions at stake you never know what they are capable of.

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@djallan

Is this a scam at $450.00 for 15 days???

Mayo Clinic Connect
Reply by @nomfundozulu on Mon, Jul 15
I was diagnosed of Emphysema (COPD) in 2017 and I have tried all possible means to get cured, i even visited pulmonologist but all to no avail, until i saw a post in a health forum about a herbal doctor from Africa who prepare herbal medicine to cure all kind of diseases including Emphysema, at first i doubted if it was real but decided to give it a try, when i contacted this herbal doctor via his email he sent me the Emphysema herbal medicine through courier service, when i received this herbal medicine, he gave me step by instructions on how to apply it, when i applied it as instructed i was totally cured of this deadly disease within 12-14 days of usage, if you are suffering of this diseases you can as well

NOTE FROM THE COMMUNITY DIRECTOR
The above message was deleted from the Connect forum. Further investigation has revealed that this is a hoax. Be careful when reading about claims of a cure on the Internet. Be diligent. Do your research. Ask questions as you have done here. Thank you.

Jump to this post

Hi @djallan @bb729, yes. The claim by Solution Health Herbal Clinic is a scam. That is why we removed the post and blocked the user who posted about the claim to cure emphysema through a herbal doctor in Africa.

In order to protect members from the scam, I have also edited your post where you copied and pasted the contact information.

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@djallan

Is this a scam at $450.00 for 15 days???

Mayo Clinic Connect
Reply by @nomfundozulu on Mon, Jul 15
I was diagnosed of Emphysema (COPD) in 2017 and I have tried all possible means to get cured, i even visited pulmonologist but all to no avail, until i saw a post in a health forum about a herbal doctor from Africa who prepare herbal medicine to cure all kind of diseases including Emphysema, at first i doubted if it was real but decided to give it a try, when i contacted this herbal doctor via his email he sent me the Emphysema herbal medicine through courier service, when i received this herbal medicine, he gave me step by instructions on how to apply it, when i applied it as instructed i was totally cured of this deadly disease within 12-14 days of usage, if you are suffering of this diseases you can as well

NOTE FROM THE COMMUNITY DIRECTOR
The above message was deleted from the Connect forum. Further investigation has revealed that this is a hoax. Be careful when reading about claims of a cure on the Internet. Be diligent. Do your research. Ask questions as you have done here. Thank you.

Jump to this post

I just wanted to make sure it was deleted! Thank you.

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@djallan, @bb729– As Colleen stated if it seems too good to be true, it isn't! I also have emphysema, a subset of COPD, and it is not curable as yet. I avoid all things that say, ever, forever, cure, miracle, etc. They always seem to be scams.

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Hi Jeanette,
I saw your post from 2018. I know it's been a couple years, but how are you doing? I am writing because I had a similar situation happen to me this week. I also had a nodule followed a few years ago (which also had not grown in 2 years), but on a CT scan that I had done last week for another issue, the radiologist commented that the nodule was unchanged but "emphysematous lungs." He did not specify type, areas affected, or if it had changed from the CT scan done a few years prior? There was no mention on the prior CT scans of this finding. I have no symptoms except for maybe a tight chest on exertion, which I attributed to being "out of shape." I am a lifelong nonsmoker, BMI 23, and age 48. I get pulmonary function tests done tomorrow. I even considered the notion that maybe the radiation from the three CTs I had done following the nodule caused the lung changes? I don't believe there are any studies to suggest that this would be possible, but I can't understand how my lungs were supposedly completely normal when it comes to emphysema a few years ago and now they are not? I was curious about how you are doing, your health status, and if you were able to find out any more information regarding your imaging studies? Any info would be very helpful, thanks!

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@emily10

Hi Jeanette,
I saw your post from 2018. I know it's been a couple years, but how are you doing? I am writing because I had a similar situation happen to me this week. I also had a nodule followed a few years ago (which also had not grown in 2 years), but on a CT scan that I had done last week for another issue, the radiologist commented that the nodule was unchanged but "emphysematous lungs." He did not specify type, areas affected, or if it had changed from the CT scan done a few years prior? There was no mention on the prior CT scans of this finding. I have no symptoms except for maybe a tight chest on exertion, which I attributed to being "out of shape." I am a lifelong nonsmoker, BMI 23, and age 48. I get pulmonary function tests done tomorrow. I even considered the notion that maybe the radiation from the three CTs I had done following the nodule caused the lung changes? I don't believe there are any studies to suggest that this would be possible, but I can't understand how my lungs were supposedly completely normal when it comes to emphysema a few years ago and now they are not? I was curious about how you are doing, your health status, and if you were able to find out any more information regarding your imaging studies? Any info would be very helpful, thanks!

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Hi @emily10, welcome to Mayo Clinic Connect. I'm tagging @jeanette52 in the hopes that that will help her see that you've addressed your questions to her.

That must've felt like a betrayal to hear "emphysematous lungs" although you were being monitored diligently. How was the pulmonary function testing today? Did you learn more about the development of your condition?

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@emily10

Hi Jeanette,
I saw your post from 2018. I know it's been a couple years, but how are you doing? I am writing because I had a similar situation happen to me this week. I also had a nodule followed a few years ago (which also had not grown in 2 years), but on a CT scan that I had done last week for another issue, the radiologist commented that the nodule was unchanged but "emphysematous lungs." He did not specify type, areas affected, or if it had changed from the CT scan done a few years prior? There was no mention on the prior CT scans of this finding. I have no symptoms except for maybe a tight chest on exertion, which I attributed to being "out of shape." I am a lifelong nonsmoker, BMI 23, and age 48. I get pulmonary function tests done tomorrow. I even considered the notion that maybe the radiation from the three CTs I had done following the nodule caused the lung changes? I don't believe there are any studies to suggest that this would be possible, but I can't understand how my lungs were supposedly completely normal when it comes to emphysema a few years ago and now they are not? I was curious about how you are doing, your health status, and if you were able to find out any more information regarding your imaging studies? Any info would be very helpful, thanks!

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@emily10– I'd also like to welcome you to Mayo Clinic Connect. Most people think that emphysema is caused by smoking. Most of the time it is unless it isn't. There are other causes, like pollution, genetic factors, chemicals and a lot of THC, or maybe second-hand smoke. It can creep up on you very slowly too and all of a sudden you are short of breath. I am a 22+ year lung cancer patient and have had hundreds of CT scans and Xrays. My emphysema is caused by 35 years of smoking. I have had many lung functions tests and hopefully, yours will tell your story. My thinking is that I question everything, even why didn't you tell me scenarios. I have made my doctors angry but they then understood that I don't read minds and need to be told everything! Will you hear soon?
https://www.mayoclinic.org/diseases-conditions/emphysema/symptoms-causes/syc-20355555

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