Jeavons Syndrome & Abscence Seizure Control

Hello-

I wanted to perhaps give some helpful information. My daughter who is 15 and had been diagnosed with Jeavons and Abscence seizures since 2016 and a few months after she started her period, began having tonic Colonic seizures. Of course, as it is with everyone the medicine journey hunt began. After 15 Tonic Colonic seizures in less than a year, we went to Mayo clinic. She now currently takes 75 mg of Briviact 2xs a day (referred to as Keppra light) and 650mg of Lamotrogine 1x a day. This has been a mini success for her. She still has some abscence seizures and Jevons flutters, but they have not been triggering a Tonic Colonic. The only exception was when she did not take her medicine and lied about it. After not taking her medicine she had two tonic colonic seizures within 48 hours. One where she face planted. Of course after the incident she admitted that she did not take her medicine. Telling us that the medicine was a helping. She now makes sure she takes her medicine 7:00am and 7:00pm. Additionally, she was having more Auras and tonic colonics during her period, so we have also started her on the Depro shot, to try and get her a little more control. I hope this is helpful and hopeful for someone. Thank you Mayo Clinic for getting our daughter on a better path for seizure control!!!