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Anyone living with Essential Thrombocythemia with JAK2?

Posted by lindamarie63 @lindamarie63, Dec 3, 2024

Has anyone been living with,ET, jac2 mutation

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eloise999 | @eloise999 | May 6 1:32pm
In reply to @eloise999 "How odd. Why doesn’t your hematologist just cooperate with an MPN specialist. This is a possibility...." + (show)
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How odd. Why doesn’t your hematologist just cooperate with an MPN specialist. This is a possibility. I had some brain fog before I started HU and after for awhile. I would say it took about 6 months for my blood counts to stabilize and my symptoms to lessen. My memory is not as sharp as it used to be, but I am 71 and I accept that aging may play a role

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@eloise999 I should clarify-I did not stop HU. I have been on it for a little over a year.

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