IVIG treatments and staying up-to-date with vaccinations

Posted by lisabethy @lisabethy, Oct 3, 2022

Two neurologists have recommended my 22 year old daughter start IVIG. She had high MOGAD titres 1:1000 in August and hasn’t been tested again yet. Due to moving out of state to go back to college she hasn’t started the IVIG treatment yet but one doctor’s office is currently working on the insurance end of it to start the process. I’m still questioning if it’s worth doing. It sounds like my daughter could just have the one attack. I’m not sure if it’s true but I read high titres are not an indication of a repeat attack. Her current symptom is fatigue and I’m not clear if the IVIG treatment helps with fatigue. In fact, it seems to cause fatigue at least initially. Am I right? I’m also not clear that the IVIG treatment is so effective at preventing future attacks and some people have side effects. What has been your experience? Why did you or your child decide to do IVIG treatments?

Also, what are your thoughts about about vaccine boosters? Some doctors are saying my daughter should stay current on the covid boosters because Covid could be an instigator for another attack and another doctor thinks she should not get a booster because she believes my daughter had a vaccine injury. Thank you!

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@lisabethy I’m just wondering how your daughter is doing. Did she go off to college?

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She graduated in May. Why?

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