It's hard to prove epilepsy to the doctor when the EEG is normal
You have lots of seizures so they do an EEG. But then during the EEG you have no seizures. How often does this kind of thing happen to us? It’s just like you feel sick so you go to the doctor and at the doctor;s you don’t have the problem/symptoms? We can’t show them the problem.
Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.
3am to 4am is my time to flip out. My wife is witness to me flopping on bed falling on floor chewing on cheek and tongue pissing my pants and being carried away by 911. yes, i am on antiseizure pill. I am on cpap mask. Last test was heart monitor 30 day. Only 1 night at 1am recorded 32 heart rate and 2.6 second stoppage of heart. Doctor said not bad enough to do further tests. No problems during day. Have a good day,Howard
Although unusual, switching from a brand to generic or generic to brand or changing manufacturers seem to lower the seizure threshold in some people including myself. Some doctors and pharmacists still insist it's not a problem. Has your Neuro increased or tried adding another medication to your regimen?
Another thing that may help is if you currently take immediate-release medication try switching to extended-release. Studies have shown improved seizure control with some extended-release medications.
Best of luck,
my plan now is to take 600mg alpha lipoic acid r-ala type every night at bedtime with only water for 60 days to try to git some relief from peripheral neuropathy in both feet which is a torture every night. My doctors do not have a plan or give a #$% just waiting for me to die.
Hello @ibwatchin and welcome to Mayo Clinic Connect. I see your first post was just yesterday and wanted to extend my welcome in addition to @jakedduck1. From what I can read, you are frustrated with both your situation as well as the lack of next steps.
Since you feel strongly that your doctors aren't supporting you have you considered a second opinion?
All of the eegs I had showed normal until I spent a few days in the hospital for an extended eeg observation. I think having someone at appointments who is close to you and has possibly observed your seizures, even mild ones help with diagnosis and getting in the correct path.
I went years without one and then started having small breakthrough-seizures and my wife had me go to my neurologist with her to help explain what she saw and things changed.