Tonight I woke myself up clawing at my skin from top to bottom, does anyone have the itchy skin with their CKD? If so what do you use to control it? I’m allergic to benadryl so I can’t take it.
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@beverlynm, thank you so much for the information. I will look into it. Im getting scars now too. My back and shoulders, and my nausea so bad. I dont understand why i dont lose weight. Thanks, Diane
@beverlynm, I am happy for you that you have found the cause and especially relief of your itching! What good news and what a relief this must be for you:-) And before I go on, I want to welcome you to Connect. We are about sharing and supporting each other, but it sounds like you already know that. Thank you for sharing this information with us.
I once had extreme itching, but for another reason (liver disease) and I know how awful it is! My family said that I looked like a bear when I rubbed my back against my favorite doorway scratching post!
I am sorry that it took a hospitalization for you to get a diagnosis for the cause. Do you mind if I ask you a question? with CKD do they routinely check for potassium and phosphorus levels?
I hope that you continue to maintain your protocol for relief. And I wish you successful treatment and containment of your CKD.
I would like to invite you to look at some of our other discussions. And please know that you are most welcome to join in anywhere with questions, or comments, or just to offer words of encouragement to any of us.
I look forward to meeting you again, soon.
@danybegood1, I am sorry to hear that you are in this health dilemma. I hope that this information might lead your medical providers with an option to consider.
In the meantime, have you tried any of the lotions mentioned by some previous ‘itchy responses’?
The “itchy” posts intrigue me. I have found a loofah-type towel(washcloth) that has helped me a great deal. Since my biggest problem area is my back where I cannot reach, I am able to reach all areas of my back with this towel. It has an exfoliating effect and is made up of what looks like netting similar to what might be used on a veil, but coarser. I found mine at Wal-Mart near the other loofahs, they come in teal green or light purple and measure about 8×18″. The package is only about 4×6″. I use mine over my entire body with Dove moisturizing body wash. I started using this about a month ago and noticed immediate improvement. My itching sores are nearly gone and I am much more comfortable. It works for me, maybe it will work for someone else if you want to try it.
@2011panc, That sounds like an awesome discovery for you! I no longer (fingers crossed) am dealing with the itch, but I feel like I want to get one for myself. Thanks:-)
You are most welcome. It suds up extremely well, I was surprised.
I found one. It’s pink 🙂
Welcome to Connect, @beverlynm,
Thank you so much for joining this discussion and especially for sharing such valuable insight. I found an article related to CKD and severe itching, in one of the scientific journals, which might interest you, as well: http://bit.ly/2rOxKm2
@beverlynm, we look forward to getting to know you better; when were you diagnosed with kidney disease and lupus?
Just got a compounded medication from a dermatologist at Mayo MN. Cream is vanicream with amitriptyline and ketamine in it for itching.
@upnorthnancy, hi. My name is Diane. I have been itching since the early 2000’s. Im crying as i write to you. Very depressed. How in the world did you get your dr to prescribe Ketamine? Thats a street drug. My effing doctors wont even prescribe xanax. I asked again for the last time and was told no. Flat out no.i swear i dont want to die but i can understand why some people kill themselves. My upper back and shoulders are getting full of scars. I dont know what else to do.