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Itching/burning skin with scleroderma

Posted by gila @gila, Jan 4, 2024

Hello, I am wondering about how others handle the itching/burning skin of morphea/scleroderma. It seems that if I get too warm, wear anything except very soft, loose clothes, and most foods ( except apples) triggers the itching and burning skin and activates new plaques. I started on Gabapentin 100mgdaily, increased to 100mg twice a day. This has helped some, but it has also causing some ankle swelling. I used clobetasol or hydrocortisone crème twice a day, Jojoba oil, only tepid showers . Benadryl causes anxiety for me, so that is out. Claritin didn’t help. Has anything worked for you?
Thank you 🙏

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lmlane292 | @lmlane292 | Jan 8, 2024

I have suffered with debilitating itch and burning for 3 years now, ever since receiving 4 full doses of Moderna Covid vaccine ( per Rheumatologist insistence). My skin burns and itches to the point that quality of life is non-existent. I am unable to get ANY sun on my skin at all as this makes it unbearable. No Dr.s have answers. Currently I am taking Atarax 3 times a day, in addition to Zyrtec.
I am frustrated !

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hildeirene | @hildeirene | Aug 25 6:01pm
In reply to @lmlane292 "I have suffered with debilitating itch and burning for 3 years now, ever since receiving 4..." + (show)
Profile picture for lmlane292 @lmlane292

I have suffered with debilitating itch and burning for 3 years now, ever since receiving 4 full doses of Moderna Covid vaccine ( per Rheumatologist insistence). My skin burns and itches to the point that quality of life is non-existent. I am unable to get ANY sun on my skin at all as this makes it unbearable. No Dr.s have answers. Currently I am taking Atarax 3 times a day, in addition to Zyrtec.
I am frustrated !

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@lmlane292 This is a while ago, how are you feeling today? I’m suffering from the same and it’s hell!!

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tls5alex | @tls5alex | Aug 26 8:23am

I don’t know if I have scleroderma but I have been dx with MCAS, Lupus SLE, Pots and likely Sjogrens. All these dx occurring 4 days after the initial Pfizer vaccine. The skin on my shins became harder and shiny and I would go crazy with itching. They developed bumps under the skin and I would get hot and burning sensation and not only on my shins but the hot prickly needles sensation all around my body. I took triple therapy, so Pepcid AC and Blexton and it would relieve these symptoms at least for a while. Sun exposure and heat as well as eating chocolate and a lot of food that I could never fully understand so I usually go through this hot needle pain and flushing two to three times a day with my shins becoming bumpy and scaly. I use a Creme to also help calm them down.

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tls5alex | @tls5alex | Aug 26 8:29am

It is a constant daily problem that impacts my quality of life and along with the brutal symptoms of Lupus and dizziness and fatigue and pain it’s a lot is all I can say. One day I hope funding will go to research on the pathophysiology of these mRNA vaccines that have wreaked havoc on many Individuals. I lost my career and my quality of life is diminished. It’s worse because of the lack of accountability and acknowledgement from our government leaders, media, politicians and medical community. I am often so sick in bed that I’m sure I’m dying or at least feel like my life will be shortened. But the triple therapy for MCAS might help at least as a bandaid to get you through the tough moments.

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