Share this:
sashamore
@sashamore

Posts: 3
Joined: Nov 23, 2016

ischemic colitis

Posted by @sashamore, Feb 17, 2017

i have recently been diagnosed w this disease….i had an intestinal resection for this in 2008, and now have a recurrence of the disease in a different section of my intestines……the doc says drink lots of water, and lower your intake of lasix, which i need because of a heart problem…….i dont understand why ischemic colitis happens, and wonder if the doc’s instructions are enough to avoid progression of the disease. i certainly dont want another operation……for the record, i’ve had lung cancer, colon cancer, and bladder cancer……lung and colon successfully treated surgically, bladder successfully treated with immunotherapy……i would appreciate your thoughts and suggestions……thanks alot, sashamore

REPLY

Hello @sashamore,

Welcome to Connect. I can only imagine how devastating it must be for you to learn about this recurrence, but we are so glad that you’ve come to the Connect Community for support.

Here is some information from Mayo Clinic: http://mayocl.in/2ltwgOC , and I’d also like to introduce you to @mo1216, @nkells, @opiffle, @frane1939, @sunnie, @crawdia, @malori33, @karthiekay, who have discussed ischemic colitis in the past.
You can also view the conversation here: http://mayocl.in/2m7z6Wj

@sashamore, what are your symptoms? How have you been coping with the recurrence?

i was hospitalized for 5 days due to ischemic colitis,thankfully I didn’t need surgery drs say It may never happen again they explained its like having a stroke in the bowels ,for some reason the blood flow stops and when it comes back so does the bleeding,

@mo1216

i was hospitalized for 5 days due to ischemic colitis,thankfully I didn’t need surgery drs say It may never happen again they explained its like having a stroke in the bowels ,for some reason the blood flow stops and when it comes back so does the bleeding,

Jump to this post

thank you…….i dont understand how to talk to this board………my
“attack” came on rather suddenly….i had been achy for so lon
 

@mo1216

i was hospitalized for 5 days due to ischemic colitis,thankfully I didn’t need surgery drs say It may never happen again they explained its like having a stroke in the bowels ,for some reason the blood flow stops and when it comes back so does the bleeding,

Jump to this post

thank you……..i really dont understand how to talk to this board, 
so thank you for an email i can respond to……….more tomorrow.  
appreciatively,  sashamore
 

I was diagnosed with Ischemic Colitis back in 2010 and have had several episodes and some recently ,I cannot take that kind of pain anymore it is indescribable. I have three stents in my heart and have had mitral valve and arota valve replacement surgerys..The pain is so bad I feel like I'm going to have a heart attack and I have tremendous colon spasms that affect my back..I was told back in 2010 That I will probably need some of my colon removed.. Now it is 2018 and I'm haveing the same problems..I have appointment with new GI doctor. I'm scared of this disease because its so painful. I throw up and and become incoherent when this happens..spasming uncontrollable with pain..I dont know what to do or how to deal with this.. please help I'm so scare I will have episode any minute because it comes on without warning.

I am so sorry to hear of your issues with you colon. I had the same thing several years ago. After having several episodes of ischemic colitis, my doctor referred me to a surgeon who scheduled me fo surgery. I had several inches of my colon removed and while I hurt like H–L, for several days; I have had very few episodes in fifteen years. I encourage you to consider having the portion of your colon removed that is affected. I know the pain you are having or at least I think I do as I went through a lot of the same pain. God Bless you and I hope you will get the help that you need. Hugs to you.

Thank you so much, I do have appointment with GI on the 14 th. So will see what happens I will inform. Again thank you for your support and God Bless you.

Please login or register to post a reply.