Is there any successful story?

@visions63 The cavity was closed, or became a nodule now. So I dont have a cavity now. Sorry that you have to go through all of these. You can go to NJH for a second opinion? Dr, Mitchell is the best surgeon in NTM lung surgery.

@sueinmn thank you! I am completely asymptomatic….my mass was found as an incidental finding on a chest x-ray. They want to treat my 3 cm cavitary mess with two years of therapy, which I cannot do. Because it’s an easy accessible mass to remove, I’m hoping that that will make my treatment easier with less antibiotic use .You are the first person who mentioned a cure …..I think that is fantastic!!!

Inhaled nitric oxide (iNO) has shown potential to kill or reduce non-tuberculous mycobacteria (NTM) infections, particularly when used at high concentrations as an adjunctive, at-home therapy. Early studies indicate that intermittent, high-dose iNO can reduce bacterial loads, disrupt biofilms, and act synergistically with standard antibiotics, improving patient outcomes. ScienceDirect.com +5Key Details on Inhaled Nitric Oxide for NTM: Mechanism: High-dose (e.g., \(160-250\text{\ ppm}\)) nitric oxide has direct bactericidal effects, destroying microorganisms and potentially reducing, or in some cases eradicating, NTM.Clinical Evidence: Pilot studies, such as the "LungFit Go" study, have shown that at-home treatment can be safe, with some patients achieving negative sputum cultures after 3 weeks of treatment.Target Population: It is being investigated for treating refractory NTM pulmonary disease, including M. abscessus, which often resists conventional antibiotics.Potential Benefits: It may reach areas of the lungs that systemic antibiotics cannot, while also potentially reducing the need for long-term, multi-drug regimens. ScienceDirect.com +5

https://pmc.ncbi.nlm.nih.gov/articles/PMC8557295/
Does anyone receive this NO treatment? It seems very promising.

@visions63 Are you aware that even after surgery, you will require many months of antibiotics? If the infection has progressed to the point of creating cavities, it is in other parts of your lung(s) as well and will not be eradicated by surgery.

Is your pulmonologist experienced in treating this rare infection, and the even more rare cavitary form of it?

@helen1000 …but you still have the infection ??the cavity xisted with necrotic tissue inside .I don’t understand that’s destroyed lung tissue and I don’t understand how destroyed lung tissue can come back????

@visions63 I believe I do. My culture turned negative after 7 months of antibiotics, But I believe the infection is not completely gone. I am still taking antibiotics now.

@sueinmn

Thanks so much. Staring all of the side effects in the face is so daunting it helps to hear.

@lauraadam2425 If you happen to see this because your post was from last month, just a question. Were you on the Big 3 every day or every other day as some are? I was on it every other day and was MAC free after a bronch 4 months later. After 14 months on meds and due to bad side effects I stopped. MAC came back 3 months later. In watch and wait mode now.