@asolidrock
If you read Colleen Young post further up you will see mentioning of reporting a post to the moderators. If you look down at a post you will see 3 dots. That is where a box will come up with a report post. That will go to moderators.
Don't confuse the mentors (like I did) with moderators. Mentors are there to help with discussions and help. Moderators are there to monitor posts. Colleen Young is the Director of MCC and also monitors posts.
I once posted monitors referring to moderators and got some responses to that but should have used the term moderators not monitors. I have no problem at all using the term moderators.
I hope my post helped. MCC is an excellent source of information from those who have gone through their personal journeys with a disease or mental health concersn.
Colleen's post (above) is excellent guidance and should be used to guide those doing post and asking am I following those policies and guidance.
Good question! At the beginning of my journey I found the forum to be extremely helpful. So when things settled down a little I tried to pay back by commenting when I thought I had something relevant to contribute.
In October of last year I commented on a post about my relevant experience, firmly in the "this is what I did" category and the OP thanked me. But in March this year, out of nowhere, I got a lengthy diatribe about the error of my personal choices and my "disservice" to this community. At first I went all-in on my rebuttal but I saw the stupidity of that and disengaged. Search for that D word if you're very, very bored.
So, sadly this is my first - and likely last - comment since that ridiculous experience. Now I dip in from time to time and read interesting posts but sadly I no longer contribute. I'm grateful for your question and the responses because, had I known about the rules and moderation, I may have gone that route. But I had other things to worry about - and still do.
So if anyone else experiences the "piling on" I insist you immediately must...
Good question! At the beginning of my journey I found the forum to be extremely helpful. So when things settled down a little I tried to pay back by commenting when I thought I had something relevant to contribute.
In October of last year I commented on a post about my relevant experience, firmly in the "this is what I did" category and the OP thanked me. But in March this year, out of nowhere, I got a lengthy diatribe about the error of my personal choices and my "disservice" to this community. At first I went all-in on my rebuttal but I saw the stupidity of that and disengaged. Search for that D word if you're very, very bored.
So, sadly this is my first - and likely last - comment since that ridiculous experience. Now I dip in from time to time and read interesting posts but sadly I no longer contribute. I'm grateful for your question and the responses because, had I known about the rules and moderation, I may have gone that route. But I had other things to worry about - and still do.
So if anyone else experiences the "piling on" I insist you immediately must...
Please reconsider your decision to stop commenting. I find your earlier posts to be appropriate and helpful. If you can ignore the diatribe your received in March and others like it, we will all benefit from your participation.
Good question! At the beginning of my journey I found the forum to be extremely helpful. So when things settled down a little I tried to pay back by commenting when I thought I had something relevant to contribute.
In October of last year I commented on a post about my relevant experience, firmly in the "this is what I did" category and the OP thanked me. But in March this year, out of nowhere, I got a lengthy diatribe about the error of my personal choices and my "disservice" to this community. At first I went all-in on my rebuttal but I saw the stupidity of that and disengaged. Search for that D word if you're very, very bored.
So, sadly this is my first - and likely last - comment since that ridiculous experience. Now I dip in from time to time and read interesting posts but sadly I no longer contribute. I'm grateful for your question and the responses because, had I known about the rules and moderation, I may have gone that route. But I had other things to worry about - and still do.
So if anyone else experiences the "piling on" I insist you immediately must...
Well, I searched lol and I can only say that that comment was completely out of place and uncalled for 😵💫😲 ! WHAT ???? One can only wonder in what kind of "unforgiving" family one lives 😰 and what intimate details one is sharing with all of the coworkers of all people 😕. We are all different and deal with stress in different ways and what we share or not is matter of privacy first and foremost.
I am flabbergasted and I can only say that you should be back and posting , by all means !
You have extensive experience with radiation treatments and your voice is very valuable here. 💗
I am sad that some other members stopped posting too 😔 ...
Well, I searched lol and I can only say that that comment was completely out of place and uncalled for 😵💫😲 ! WHAT ???? One can only wonder in what kind of "unforgiving" family one lives 😰 and what intimate details one is sharing with all of the coworkers of all people 😕. We are all different and deal with stress in different ways and what we share or not is matter of privacy first and foremost.
I am flabbergasted and I can only say that you should be back and posting , by all means !
You have extensive experience with radiation treatments and your voice is very valuable here. 💗
I am sad that some other members stopped posting too 😔 ...
@surftohealth88 Curiosity got the better of me, too.
Wow.
You don't tell someone that you'll never meet, how to handle the C news.
Maybe he didn't want to repeat "the story" 20 times to 20 different people.
As for me, I told everyone who asked.
First was my family - who are all in Australia, so it's Facebook messages back & forth.
But that was mainly to say to my brothers "If you ever get asked if there's family history of prostate cancer, now you have to say yes. My bad."
What was interesting at work is that although I told anyone who cared, many others were told that I was going to be away for 6 weeks for "medical treatment".
I later asked them about it & apparently, they wanted to protect my "privacy".
As we all know, concerns about privacy & bashfulness go out the window when your legs are in stirrups & some dude slides an ultrasound thing where the sun don't shine & starts stabbing you.
What awful comments. I hope he's gone.
We're here to share experiences & support.
Good question! At the beginning of my journey I found the forum to be extremely helpful. So when things settled down a little I tried to pay back by commenting when I thought I had something relevant to contribute.
In October of last year I commented on a post about my relevant experience, firmly in the "this is what I did" category and the OP thanked me. But in March this year, out of nowhere, I got a lengthy diatribe about the error of my personal choices and my "disservice" to this community. At first I went all-in on my rebuttal but I saw the stupidity of that and disengaged. Search for that D word if you're very, very bored.
So, sadly this is my first - and likely last - comment since that ridiculous experience. Now I dip in from time to time and read interesting posts but sadly I no longer contribute. I'm grateful for your question and the responses because, had I known about the rules and moderation, I may have gone that route. But I had other things to worry about - and still do.
So if anyone else experiences the "piling on" I insist you immediately must...
@rtmcknight I think we’ve all seen more than a a bit of that here and are frustrated by similar experiences. A support group is there to lend an ear, share common experiences and answer questions but not to question or challenge any individual’s personal treatment choices or contradict the advice they have received from their own medical providers.
The fact that the group is affiliated with Mayo Clinic may give it an image of medical authority that separates it from other message boards, but as Mayo Clinic providers are not commenting or censoring some of the posts, that credibility may not always be factual.
Thanks for the support and the distinct lack of piling on. I am inspired to begin commenting again when I have something relevant to contribute.
The number of people who know about my C-News is mostly unchanged. My brother was added to the 'chosen few' in April, mainly to pass on the Chek-2 info and to ensure he had a PSA test. He did and got a 0.53.
Otherwise I have no regrets on my choices and it often gives me strength when the C-Card remains in my mental wallet unused. Except occasionally for jokes. I don't for a second think that my approach would work for you, I'm just saying that who you tell about your condition is as much of a choice as anything else.
After a good start, this year has been quite difficult. I had unexpected issues relationship issues with my three closest friends. Once is bad, twice is worrying, but by the third time I really had to question if ADT (plus all my other side effects) had affected my personality to the point where I was losing friends because of it. I've introspected deeply on this and my conclusion is that ADT-me handled thes random, unrelated, issues less than perfectly and I'm now being extremely careful with 7 more months left to endure. Ironically I think ADT-me has had some useful personality improvements that I intend to nurture going forward and I am happy to report that I learned from these experiences and two of the three friendships are back to normal (one) or improved (the other).
By now I have a lot of experience with ADT and all our other difficulties so please reach out if you'd like my perspective and do not want to ask in the public forum.
Good question! At the beginning of my journey I found the forum to be extremely helpful. So when things settled down a little I tried to pay back by commenting when I thought I had something relevant to contribute.
In October of last year I commented on a post about my relevant experience, firmly in the "this is what I did" category and the OP thanked me. But in March this year, out of nowhere, I got a lengthy diatribe about the error of my personal choices and my "disservice" to this community. At first I went all-in on my rebuttal but I saw the stupidity of that and disengaged. Search for that D word if you're very, very bored.
So, sadly this is my first - and likely last - comment since that ridiculous experience. Now I dip in from time to time and read interesting posts but sadly I no longer contribute. I'm grateful for your question and the responses because, had I known about the rules and moderation, I may have gone that route. But I had other things to worry about - and still do.
So if anyone else experiences the "piling on" I insist you immediately must...
@rtmcknight@surftohealth88@peterj116 if you see something out of line and contrary to the Community Guidelines, I encourage you to report so that the moderating team can take action.
Mayo Clinic Connect should be a safe place where members feel comfortable sharing their experiences and to learn with peers. Abusive behavior is not allowed and such posts will be removed.
@rtmcknight I think we’ve all seen more than a a bit of that here and are frustrated by similar experiences. A support group is there to lend an ear, share common experiences and answer questions but not to question or challenge any individual’s personal treatment choices or contradict the advice they have received from their own medical providers.
The fact that the group is affiliated with Mayo Clinic may give it an image of medical authority that separates it from other message boards, but as Mayo Clinic providers are not commenting or censoring some of the posts, that credibility may not always be factual.
@rbtsch1951, your first paragraph is spot on. Members of a support group " lend an ear, share common experiences and answer questions." Mayo Cinic Connect provides such a moderated space for patients and caregivers to connect with one another and give and get support as well as share personal experiences and knowledge they've gathered in the course of their cancer journey.
If anyone sees a post that require a moderator's attention or is questionable, please report it.
How to report:
1. Click the 3 dots (...) in the lower right corner of the comment.
2. Select "Report comment"
3. Write the reason for the report and SUBMIT.
Thanks for the support and the distinct lack of piling on. I am inspired to begin commenting again when I have something relevant to contribute.
The number of people who know about my C-News is mostly unchanged. My brother was added to the 'chosen few' in April, mainly to pass on the Chek-2 info and to ensure he had a PSA test. He did and got a 0.53.
Otherwise I have no regrets on my choices and it often gives me strength when the C-Card remains in my mental wallet unused. Except occasionally for jokes. I don't for a second think that my approach would work for you, I'm just saying that who you tell about your condition is as much of a choice as anything else.
After a good start, this year has been quite difficult. I had unexpected issues relationship issues with my three closest friends. Once is bad, twice is worrying, but by the third time I really had to question if ADT (plus all my other side effects) had affected my personality to the point where I was losing friends because of it. I've introspected deeply on this and my conclusion is that ADT-me handled thes random, unrelated, issues less than perfectly and I'm now being extremely careful with 7 more months left to endure. Ironically I think ADT-me has had some useful personality improvements that I intend to nurture going forward and I am happy to report that I learned from these experiences and two of the three friendships are back to normal (one) or improved (the other).
By now I have a lot of experience with ADT and all our other difficulties so please reach out if you'd like my perspective and do not want to ask in the public forum.
@rtmcknight Good stuff. I used the term "the new me" as I went through treatment phases and changes. In my view we are here to share our collective experience, strength and hope with each other.
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1 ReactionGood question! At the beginning of my journey I found the forum to be extremely helpful. So when things settled down a little I tried to pay back by commenting when I thought I had something relevant to contribute.
In October of last year I commented on a post about my relevant experience, firmly in the "this is what I did" category and the OP thanked me. But in March this year, out of nowhere, I got a lengthy diatribe about the error of my personal choices and my "disservice" to this community. At first I went all-in on my rebuttal but I saw the stupidity of that and disengaged. Search for that D word if you're very, very bored.
So, sadly this is my first - and likely last - comment since that ridiculous experience. Now I dip in from time to time and read interesting posts but sadly I no longer contribute. I'm grateful for your question and the responses because, had I known about the rules and moderation, I may have gone that route. But I had other things to worry about - and still do.
So if anyone else experiences the "piling on" I insist you immediately must...
Just kidding. Peace.
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Hug
6 ReactionsPlease reconsider your decision to stop commenting. I find your earlier posts to be appropriate and helpful. If you can ignore the diatribe your received in March and others like it, we will all benefit from your participation.
-
Like -
Helpful -
Hug
3 Reactions@rtmcknight
Well, I searched lol and I can only say that that comment was completely out of place and uncalled for 😵💫😲 ! WHAT ???? One can only wonder in what kind of "unforgiving" family one lives 😰 and what intimate details one is sharing with all of the coworkers of all people 😕. We are all different and deal with stress in different ways and what we share or not is matter of privacy first and foremost.
I am flabbergasted and I can only say that you should be back and posting , by all means !
You have extensive experience with radiation treatments and your voice is very valuable here. 💗
I am sad that some other members stopped posting too 😔 ...
-
Like -
Helpful -
Hug
1 Reaction@surftohealth88 Curiosity got the better of me, too.
Wow.
You don't tell someone that you'll never meet, how to handle the C news.
Maybe he didn't want to repeat "the story" 20 times to 20 different people.
As for me, I told everyone who asked.
First was my family - who are all in Australia, so it's Facebook messages back & forth.
But that was mainly to say to my brothers "If you ever get asked if there's family history of prostate cancer, now you have to say yes. My bad."
What was interesting at work is that although I told anyone who cared, many others were told that I was going to be away for 6 weeks for "medical treatment".
I later asked them about it & apparently, they wanted to protect my "privacy".
As we all know, concerns about privacy & bashfulness go out the window when your legs are in stirrups & some dude slides an ultrasound thing where the sun don't shine & starts stabbing you.
What awful comments. I hope he's gone.
We're here to share experiences & support.
-
Like -
Helpful -
Hug
2 Reactions@rtmcknight I think we’ve all seen more than a a bit of that here and are frustrated by similar experiences. A support group is there to lend an ear, share common experiences and answer questions but not to question or challenge any individual’s personal treatment choices or contradict the advice they have received from their own medical providers.
The fact that the group is affiliated with Mayo Clinic may give it an image of medical authority that separates it from other message boards, but as Mayo Clinic providers are not commenting or censoring some of the posts, that credibility may not always be factual.
-
Like -
Helpful -
Hug
4 ReactionsThanks for the support and the distinct lack of piling on. I am inspired to begin commenting again when I have something relevant to contribute.
The number of people who know about my C-News is mostly unchanged. My brother was added to the 'chosen few' in April, mainly to pass on the Chek-2 info and to ensure he had a PSA test. He did and got a 0.53.
Otherwise I have no regrets on my choices and it often gives me strength when the C-Card remains in my mental wallet unused. Except occasionally for jokes. I don't for a second think that my approach would work for you, I'm just saying that who you tell about your condition is as much of a choice as anything else.
After a good start, this year has been quite difficult. I had unexpected issues relationship issues with my three closest friends. Once is bad, twice is worrying, but by the third time I really had to question if ADT (plus all my other side effects) had affected my personality to the point where I was losing friends because of it. I've introspected deeply on this and my conclusion is that ADT-me handled thes random, unrelated, issues less than perfectly and I'm now being extremely careful with 7 more months left to endure. Ironically I think ADT-me has had some useful personality improvements that I intend to nurture going forward and I am happy to report that I learned from these experiences and two of the three friendships are back to normal (one) or improved (the other).
By now I have a lot of experience with ADT and all our other difficulties so please reach out if you'd like my perspective and do not want to ask in the public forum.
Have an awesome weekend
-
Like -
Helpful -
Hug
7 Reactions@rtmcknight @surftohealth88 @peterj116 if you see something out of line and contrary to the Community Guidelines, I encourage you to report so that the moderating team can take action.
Mayo Clinic Connect should be a safe place where members feel comfortable sharing their experiences and to learn with peers. Abusive behavior is not allowed and such posts will be removed.
-
Like -
Helpful -
Hug
4 Reactions@rbtsch1951, your first paragraph is spot on. Members of a support group " lend an ear, share common experiences and answer questions." Mayo Cinic Connect provides such a moderated space for patients and caregivers to connect with one another and give and get support as well as share personal experiences and knowledge they've gathered in the course of their cancer journey.
You can learn why and how Mayo Clinic Connect is moderated here:
Why & How Mayo Clinic Connect is moderated: https://connect.mayoclinic.org/blog/about-connect/tab/moderators/
If anyone sees a post that require a moderator's attention or is questionable, please report it.
How to report:
1. Click the 3 dots (...) in the lower right corner of the comment.
2. Select "Report comment"
3. Write the reason for the report and SUBMIT.
-
Like -
Helpful -
Hug
4 Reactions@rtmcknight Good stuff. I used the term "the new me" as I went through treatment phases and changes. In my view we are here to share our collective experience, strength and hope with each other.
-
Like -
Helpful -
Hug
4 Reactions