Is there a moderator?

I know of which you speak. Main reason I decided not to check here much after sharing my first PSA after surgery. First time back reading after months of staying away.

@ucla2025
I am going to send you a private message. I too some time ago was at the point and feeling the way you are now. But please know your voice is just as important as anyones.

The Prostate Cancer Foundation used to have a forum like this one but they had to shut it down. Too much " your doctor doesn't know what he's talking about". Or " You should do ____" from non-professionals. I once mentioned that MSKCC uses a .05 threshhold to consider cancer undetectable. Some dude jumped down my throat and said it shoud be .03. LOL. My surgeon was the chief of urology at Sloan Kettering . If you can't trust him....

@ucla2025

I also had to start limiting my time on this forum. Most people are awesome on here and abide by the forum guidelines asking questions and sharing their experiences. But there is one very active person in this forum who touts himself as the expert and their comments regularly spill over into medical advice. If you’ve spent much time here, you will know who this is. He’s been reported to the moderator by more than one person yet he remains. I had to limit my time here because it doesn’t feel like a safe space. In other forums like on Reddit, which can be the Wild West, people will actively call out such behavior.

@xahnegrey40 ,
Yeah, PCRI has some great videos. Dr. Scholz comes across as a strait-shooter and covers almost anything you're wondering about.

@ucla2025
I can understand your frustration. Sometimes people can project their own frustrations on others, wishing they had not made the choices that they made. Even though their comments have not been helpful for you, I think their perceived insensitivity is more their passionate desire to help you be successful in treatment approach.
That said, I hear ya! I also get frustrated and have to stop going on some forums for all the same reasons as you. I found some relief by watching videos of experts talking about life threatening illness and such of I go on forums not specific to prostate cancer. That way you get less feedback on specific cancer treatments.
I am sincerely sorry you and family are faced with this illness. I trust you will navigate through it and find continued peace and happiness as you do so.

This is a social media site where you ask a question to get answers from someone more knowledgeable than yourself. That is just about everyone for me that is on the prostate cancer site. I am also on the PMR and auto immune sites. I would hate to see anyones comments removed. If you dont like the answer or the delivery there are others that will respond. There are many life learned experts on here that try to help. I found Facebook might be a better place for those that just want to talk.

@happydappy In my opinion, there are several Cyberbullies on this and other sites devoted to prostate cancer. People can make excuses for their behavior, such as they are frustrated, trying to help, passionate, etc. I find their behavior to be abhorrent and harmful. I seldom come to this site anymore because of them. I much appreciate the forums where posts are screened before being allowed to appear. This is not about free speech, it's about protecting the majority of responsible people from the hurtful and harmful behavior of others on a non-governmental health forum.

@ucla2025 You are not too sensitive. It is patently absurd for someone to state that "everyone" on this site has your best interest in mind. They don't. And, btw, I am also a patient at UCLA. We are getting outstanding care and no one should have the. gall to tell you otherwise. I would not travel 1200 miles for care there if I did not know it was outstanding.

@koji480 agreed, as anyone with a contrary view or advice from their doctors gets questioned. As a result, people are making treatment decisions. My care has been at two national centers of excellence and I trust them more than anything said by a few “experts” in this site.