Is taking otezla an effective treatment for lichen planopolaris
I was diagnosed with lichen planopolaris four years ago and am still in treatment. Taking Otezela twice a day to cool the immune system. My scalp burns and itches everyday and my hair continues to fall! I take GabApentine, 600 mg per day for the pain. Anyone has better results or remission?
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@jtrahan45hotmail Welcome to Mayo Clinic Connect! We’re glad you’re here. Have you had the burning, itching and hair loss for 4 years? And when did you start otezla? What doctor speciality is treating you? Lots of questions, but it will help the members ‘know’ you a little better.
https://connect.mayoclinic.org/group/autoimmune-diseases/ This site
Lists the discussions that have already taken place, but you might get some good information.
Members will probably answer you tomorrow.
I’m so sorry you are going through this. I totally get it!
I was diagnosed back in September 2022. The doctor believes this was triggered by an osteoporosis drug I had been prescribed.
My scalp burned terribly, could barely comb my hair. Had diffuse hair loss, but heavier on the crown. My doctor recommended several treatments, I refused all of them, too many side effects. This was because I was already dealing with multiple side effects from the osteoporosis drug.
My doctor mentioned red light therapy had shown to be somewhat effective. I purchased an iRestore helmet. I’ve used it every evening since. My hair loss has slowed quite a bit to almost nothing for periods of time. Now I still experience heavier hair fall on and off.
I find the worst times are in the summer. I am a gardener and I believe spending a lot of time outside in the sun and heat make this worse, even though I wear a hat. But mostly my condition has stabilized.
There are times I’ll notice a spot on my scalp that burns and itches, there is a serum that I’ll use on that spot that seems to really quiet it down.
Overall I think the red light therapy has made a difference for me.
I’m curious, have you been diagnosed with any other autoimmune conditions?
I know this is tough to go through, stay positive, I believe our mind set affects our overall health, especially level of inflammation.