Many symptoms still 2 months after meningioma surgery

Posted by rajincajunmom @rajincajunmom, Feb 3, 2017

I am still having pain since my surgery. I was not told anything about this surgery as far as what to expect. My face is sinking in and the middle of my head is numb. I feel so alone. The doc refuses to give melanin meds and I've been to the ER at least 5 times since the surgery and have also been admitted back in the hospital because of an infection and fever. I am nauseated daily and have difficulties eating

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Profile picture for Randy Shields @randallshields56

@disons My condolences for the loss of your son.
we both had very similar operations. I had meningioma surgery march of 2024.
again weeks later to go back into the incision site to stop a bleeder. my tumor was cancerous and ended up having radiation and chemo treatments. You described numerous things wrong since the operations and we both have so many similarities in things we need to recover from, balance, cognative functions, depression and anxiety issues. i can help you with numerous things that helped me if you are willing and want to message me back, like lets try a couple at a time because too much makes me anxious. Have a blessed day.

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@randallshields56 , thank you, you are very sweet. I don’t mind messaging back and forth but would prefer text if that is okay with you. I should but don’t always check my emails and at times go through so fast I skip over a lot.
Here is my phone #you are uncomfortable with text I understand. Well I tried to send my number and it’s not aloud. Let’s see if we can connect on F B. I am Diana Hanna Juravlea. Let’s see if this goes through

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Profile picture for disons @disons

@randallshields56 , thank you, you are very sweet. I don’t mind messaging back and forth but would prefer text if that is okay with you. I should but don’t always check my emails and at times go through so fast I skip over a lot.
Here is my phone #you are uncomfortable with text I understand. Well I tried to send my number and it’s not aloud. Let’s see if we can connect on F B. I am Diana Hanna Juravlea. Let’s see if this goes through

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@disons
Its taken me two year's and in March 3 year's and just this month have really improved in many areas. Ask what you want to work on first and second, ill let you know what helped me most.

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Profile picture for disons @disons

@methel - Thank you. I am now 69, so I definitely think some were from having surgery after surgery. Some of these symptoms are due to BII, Breast Implant Illness. Thank God I had an Explant July 30, 2025. The toxic silicone implants were killing me. Feeling so much better since they are out. I didn’t know till recently that it was necessary to remove part of my temporal lobe- the amygdala was removed as well as part if not all of the hippocampus - sorry my spelling is really bad. The effects due to this can show up anytime. Most of what is happening to me is a result of that. I had read up so much of it, sad but I feel validated that there is a reason this is happening. Too many people just think I am over exaggerating everything. My new neurologist said it could definitely be from that. I see her Monday so we can discuss this further. It’s another bump in my journey. Sometimes it’s a lot and brings me down other times I go with the flow. I think losing my independence, being home restricted for so long has brought a lot of these feelings up. Once I came have a little more freedom on my own, it will just be who I am and not effect me so much as I God Willing will be more active. My PT will be here soon, have a Blessed Day.

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@disons

Good that you will see a new neurologist very soon. Because it’s known what parts of the brain were affected in the surgery, they may be able to determine the surgical side effects versus anything else.

Again, best wishes to you in your recovery

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Thank you, went to Neuro today. She confirmed a lot of these can be happening because of what they removed from my brain. There was a good portion of the temporal lobe that was removed. She wants to test the nerves in my legs at next visit to see if there is a problem. If not then we know where it’s coming from. Oh well, it is what it is, my journey that God is leading me through. I am Blessed to be here, so whatever deficiency I am getting, is mine, it all becomes a part the new me. I will mourn the loss of who I was and embrace a stronger better version of the me now. I am in the learning stages- it’s all good. Have a Blessed Day…

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Profile picture for disons @disons

Thank you, went to Neuro today. She confirmed a lot of these can be happening because of what they removed from my brain. There was a good portion of the temporal lobe that was removed. She wants to test the nerves in my legs at next visit to see if there is a problem. If not then we know where it’s coming from. Oh well, it is what it is, my journey that God is leading me through. I am Blessed to be here, so whatever deficiency I am getting, is mine, it all becomes a part the new me. I will mourn the loss of who I was and embrace a stronger better version of the me now. I am in the learning stages- it’s all good. Have a Blessed Day…

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@disons Your courage in the face of such a difficult diagnosis and treatment, is awesome, and inspiring to me! Hang in there! You, too, have a blessed dsy!

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