Has anyone experienced jolting pain, spasms/and numbness in their legs
I have been diagnosed with PMR… prednisone has managed my low back and upper body pain, however the electric jolts of pain and spasms/cramps as well as numbness in my legs and feet not so much. Really harsh when I first wake up.
I am now on gabapentin for nerve pain and a muscle relaxer plus prednisone; and as long as I standup I generally feel ok. I cannot sit comfortably for more than a few minutes and if I lay down the whole cycle begins again.
If you have experienced this I would love to hear how you manage it.
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I would be suspecting something other than/in addition to PMR, and would be going to my primary care doc or directly to a neurologist.
Good luck.
Yes ... I was on Prednisone when I had very intense, excruciating and radiating leg pain. It was a burning pain and somewhat electric. Since I was also having acute onset neurological changes --- numbness, tingling, weakness, foot drop and loss of reflexes ... an emergency MRI was done. I had severe spinal stenosis. As the spine surgeon said "the nerve roots exiting my lumbar spine were being crushed."
I couldn't stand the pain any longer so I took a "huge dose" of prednisone. Corticosteroids will help nerve pain if inflammation is involved and it did in my case. My rheumatologist wasn't so pleased that I took so much prednisone. She wanted to know who said it was "piriformis syndrome" caused by PMR. She said a localized steroid injection would be more appropriate.
https://www.webmd.com/pain-management/piriformis-syndrome-causes-symptoms-treatments
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Just for informational purposes, I also have a condition called trigeminal neuralgia. This "electrical facial pain" was also excruciating and flared up whenever my systemic inflammation from PMR was too high. The neurosurgeon who did surgery for trigeminal neuralgia also said prednisone might help but it isn't routinely used to treat trigeminal neuralgia.
There are many other medications to treat nerve pain. Have you tried anything else besides gabapentin and muscle relaxants? Physical therapy and conservative interventions might help. Otherwise, nerves that are being impinged or compressed for some reason, may need surgical intervention.
Thanks. I’ve already had an mri, since my rheumatologist thought something else was going on. But not.
I agree. PT (deep mayo facial) is helpful
I’ll check in with my doc about other drugs and or steroid injections.
Thanks. On it.
Leg pain has been one of my symptoms off and on since I was diagnosed with PMR in 2021. My primary doctor initially dismissed my complaints of upper body pain and said my problems were all spine-related. I have had MRI's over the years documenting low back nerve impingement but I have led an active life and managed pain without drugs or surgery. My upper body symptoms got worse and I was finally diagnosed with PMR and referred to rheumatology. The rheumatologist also thought my leg pain was spine-related. At one point I complained of problems sitting due to tenderness in a small area of my upper low back and also burning pain in my thighs. I had never had this pain before. He referred me to a pain management specialist who was very helpful. He analyzed an older MRI compared to recent and gave me a cortisone shot in my upper low back. It took away the pain in my spine and improved the leg pain 70%. I feel that the spine pain may have been caused by interspinous bursitis, which can be caused by PMR. The pain management doctor thought the cause was prednisone deteriorating the soft tissue covering my spine. At any rate, the shot largely fixed the problems. Earlier this year I started having leg pain at night. It was burning pain and pins-and-needles that would move around. Either I couldn't get to sleep in the first place or would wake up at 2 AM and not get back to sleep due to pain. This was part of a disease flare-up after I needed to stop Kevzara due to cost. Symptoms calmed down when I took it easy for a few weeks. I've now been on Actemra for 2 months and the leg pain is completely gone. I feel that the leg pain may have been vascular caused by giant cell arteritis which has recently been added as a diagnosis. No matter what the cause for the leg pain, a cortisone shot and now Actemra have been very helpful. I have a back problem and it may be worse when I get off the drugs but I think doctors tend to jump to conclusions that a spine problem is causing any pain a patient may have. My primary doctor said that her medical school professor in New York told the class not to look for a zebra in Central Park, to look at the simplest and most obvious causes for a disease first. A few weeks later I saw a story in the New York Times about some zebras that had gotten loose in the New York suburbs! As far as your case goes, I would ask your doctor about a low back MRI or referrals to specialists in neurology or pain management.
It was a hard lesson for me to learn but not all pain is caused by PMR. Also, Prednisone won't make every pain disappear. Prednisone might help the pain when you don't know what is causing the pain but that doesn't mean it is appropriate to take more prednisone.
I still haven't had a lumbar fusion. Had the pain persisted, I would have done the surgery in an instant. The spine surgeon said I was a poor candidate for surgery because of prednisone.
Now that I'm off Prednisone ... the surgeon is ready when I'm ready. The surgeon now says it isn't about the pain anymore because of all the neurological deficits that I have.
The spine surgeon was also incredulous when I claimed to never have had back pain in spite of all the problems with my spine. Then I confessed that I had a lot of back pain but prednisone always stopped the pain.
Yes!
Can hardly call spasms---I woke up one night and the bottom of my foot, calf, inner thigh and low back seized. Woke up screaming. It happened once, but the feeling of a 'spasm' occasionally.
This past week am experiencing tingling and numbness on my left foot, with upper thigh or calf tightening after taking 10 steps.
Grrrrrr
All these weird feelings!
Yes!!!! Sooooo painful. My Dr. has prescribed gabapentin (for neuropathic pain) just starting it so don’t know yet if it will work. I wake up every morning with tingling/numb feet. My calves are cramped and it is severally painful to sit and/or walk.
For the cramping my Dr. prescribed cyclobenzaprine a muscle relaxer which does work to relieve the feeling of my muscles seizing
Do you take magnesium (without added vitamin B6) for cramps? A full blood test might show if you're deficient in any salts or minerals which can cause cramping. Prednisone does change the balance of salts and minerals.
Thanks