1. < Parkinson's Disease

Is anyone using Rytary?

Posted by tllaes @tllaes, Aug 17, 2018

My doctor is suggesting I switch from a combination of Sinemet 25/100 and 50/200 to Rytary 36.25 mg-145 mg oral capsule,extended release. I would take 3 cap(s) 3 times a day. He feels my on time will increase. Is anyone taking Rytary? It is very expensive and not covered in my Rx Formulary at this time. If you are taking has it been an improvement? I have Parkinson for almost 7 years.

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parkiegirl | @parkiegirl | Dec 6, 2021
In reply to @hopeful33250 "Hi @parkiegirl As it has been a while since you last posted, I was wondering how..." + (show)
@hopeful33250

Hi @parkiegirl

As it has been a while since you last posted, I was wondering how you are feeling now. Have you had any improvement in gait or any changes in meds?

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Still not good. I started osmolex and I had a bad reaction so I am at square one

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1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 6, 2021
In reply to @parkiegirl "I just do not function at my most optimal level. My gait is off, I am..." + (show)
@parkiegirl

I just do not function at my most optimal level. My gait is off, I am still, brain fog

Jump to this post

Hi @parkiegirl

As it has been a while since you last posted, I was wondering how you are feeling now. Have you had any improvement in gait or any changes in meds?

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 11, 2021
In reply to @parkiegirl "I just do not function at my most optimal level. My gait is off, I am..." + (show)
@parkiegirl

I just do not function at my most optimal level. My gait is off, I am still, brain fog

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I'm sorry to hear that, @parkiegirl. Those are difficult symptoms to live with. Do you have many falls?

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parkiegirl | @parkiegirl | Oct 11, 2021
In reply to @hopeful33250 "@parkiegirl I am sorry to hear that the change in dosage has not been as successful..." + (show)
@hopeful33250

@parkiegirl

I am sorry to hear that the change in dosage has not been as successful as you had hoped it would.

When you said, "sometimes it just does not work" what are you referring to? Is it a problem with balance, gait, etc.?

Jump to this post

I just do not function at my most optimal level. My gait is off, I am still, brain fog

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2 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 9, 2021
In reply to @parkiegirl "It has improved somewhat....I have less dyskinesia but sometimes it just does not work. VERY frustrating" + (show)
@parkiegirl

It has improved somewhat....I have less dyskinesia but sometimes it just does not work. VERY frustrating

Jump to this post

@parkiegirl

I am sorry to hear that the change in dosage has not been as successful as you had hoped it would.

When you said, "sometimes it just does not work" what are you referring to? Is it a problem with balance, gait, etc.?

REPLY
1 reply
parkiegirl | @parkiegirl | Oct 9, 2021
In reply to @hopeful33250 "Hi @parkiegirl, Last month you indicated that you were going to lower the dose of Rytary,..." + (show)
@hopeful33250

Hi @parkiegirl,

Last month you indicated that you were going to lower the dose of Rytary, or consider going back to C/L.

How is the lower dose working for you?

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It has improved somewhat....I have less dyskinesia but sometimes it just does not work. VERY frustrating

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1 reply
Howard S. | @hjscheib | Oct 8, 2021
In reply to @hopeful33250 "Hi @jhscheib, I'm pleased to hear that the change back to Carb/Levo was good for you...." + (show)
@hopeful33250

Hi @jhscheib,

I'm pleased to hear that the change back to Carb/Levo was good for you. I hope that it continues to work well for you.

Are you still doing better now with the "off periods?"

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Yes, the change back to carb/lev proved and continues to be a positive one. I also take Azilect (rasagiline) toward the PREVENT the slowing down of the development of the disease. And there is a fourth dose of car/lev that should (is) help during the off periods.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 8, 2021
In reply to @parkiegirl "We lowered the dose and see how it goes. I might go back to C/L if..." + (show)
@parkiegirl

We lowered the dose and see how it goes. I might go back to C/L if I am still having issues.

Jump to this post

Hi @parkiegirl,

Last month you indicated that you were going to lower the dose of Rytary, or consider going back to C/L.

How is the lower dose working for you?

REPLY
1 reply
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 8, 2021
In reply to @hjscheib "after consulting with my neurologist (a movement disorder specialist0, we went back to carb./levo., increased my..." + (show)
@hjscheib

after consulting with my neurologist (a movement disorder specialist0, we went back to carb./levo., increased my dosage in it, to two pills 4X per day and I feel much better, all around. With the 4th dose of carb./lev. my doctor thought there would be enough coverage through off periods, and I think he is correct. @howard (Howard Scheiber, PhD)

Jump to this post

Hi @jhscheib,

I'm pleased to hear that the change back to Carb/Levo was good for you. I hope that it continues to work well for you.

Are you still doing better now with the "off periods?"

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2 replies
Howard S. | @hjscheib | Oct 4, 2021

I also take Rasagiline (1 mg) toward blocking an increase in symptoms and slowing the growth of the disease. @howard

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