Is anyone using Rytary?

I'm sorry to hear that your doctor is not being more proactive on your behalf, @parkiegirl. Can you seek a second opinion with a movement disorder specialist? This is a neurologist with special training in disorders like Parkinson's. Here is some information, https://www.michaeljfox.org/news/movement-disorder-specialists.

On the link there is a directory of movement disorder specialists. Will you take a look at it?

I am having trouble connecting with my doctor. He is not really proactive with reaching out to try new meds. He just has me stop the drug and then nothing until my next appointment. My worse symptom is my gait and cognitive problems.

I am sorry to hear that, @parkiegirl. Does your doctor offer you any other options? I'm wondering, also, what is your worst symptom now?

Still not good. I started osmolex and I had a bad reaction so I am at square one

Hi @parkiegirl

As it has been a while since you last posted, I was wondering how you are feeling now. Have you had any improvement in gait or any changes in meds?

I'm sorry to hear that, @parkiegirl. Those are difficult symptoms to live with. Do you have many falls?

I just do not function at my most optimal level. My gait is off, I am still, brain fog

@parkiegirl

I am sorry to hear that the change in dosage has not been as successful as you had hoped it would.

When you said, "sometimes it just does not work" what are you referring to? Is it a problem with balance, gait, etc.?

It has improved somewhat....I have less dyskinesia but sometimes it just does not work. VERY frustrating

Yes, the change back to carb/lev proved and continues to be a positive one. I also take Azilect (rasagiline) toward the PREVENT the slowing down of the development of the disease. And there is a fourth dose of car/lev that should (is) help during the off periods.