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Is anyone using Rytary?
My doctor is suggesting I switch from a combination of Sinemet 25/100 and 50/200 to Rytary 36.25 mg-145 mg oral capsule,extended release. I would take 3 cap(s) 3 times a day. He feels my on time will increase. Is anyone taking Rytary? It is very expensive and not covered in my Rx Formulary at this time. If you are taking has it been an improvement? I have Parkinson for almost 7 years.
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My husband takes Rytary - it lasts about 5 hours vs 3 hours with Sinemet. Ocassionally, he supplements with a Sinemet at times when the wearing off happens sooner. Everyone and every day can be different with Parkinson’s. Rytary has given him more time in between doses and well worth the extra copay.
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2 ReactionsI live alone on 22 acres in coastal California. My son comes to stay with me several days a week. Neighbors have been cutting the property to prevent fire damage. My daughter recently drove me up to Portland to visit the rest of my family. I have a great support group and am enjoying my life a lot! I even see my 8th grade boyfriend in Texas. Thanks for asking!
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3 ReactionsI'm sorry that you had to deal with breast cancer soon after your husband's death, @raebaby. That must have been very stressful. It is good news, however, that the blook work indicates that it probably won't reoccur.
Have you adjusted to living alone and do you have a good support network of family and friends?
I'm doing well. Not long after
my husband died I developed breast cancer. My oncologist recently said my blood work showed I wasn't expected to have my cancer come back.
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2 ReactionsI appreciate you sharing that information about Rytary, @raebaby. How are you doing?
My husband of 58 years died with Parkinson's. He took Rytary and it stopped the "wearing off "he was experiencing. It was of great benefit. He got it for a $100 co-pay through a program his neurologist recommended.
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4 ReactionsI was diagnosed with Parkinson’s in 2017 starting with a trimmer in my right hand. I took the sentiment for about three years due to nausea he started me on Rytary 48.75–1 95 mg taking three pills four times a day in June 2023. I take other medicines and started having trouble. My parkinson doctor at Mayo Cut my dosage to about half 23mg?? One tablet at seven and one at 2 PM so far I have trimers in the evening along with stiffness in my feet in the morning. I’m in stage 1 of Parkinson.
My doctor’s Secretary helped me get Amneal patient assistant program in which the Rytary is sent to me by UPS once every three months Free the phone number for them is 877-764-9021. I hope this helps and answers your questions. Message me here if you have more question.
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Hello @21amy,
I see that you had an appointment with your neurologist in June. Was the doctor able to help you with the nausea or the changes you were wanting to the Rytary dosage?
Hello @herbie87 and welcome to the PD support group on Mayo Connect. I'm glad to hear that the Rytary is helping with your off times.
When I was diagnosed with PD, I was having balance problems and foot dragging. What were your initial symptoms? How long ago were you diagnosed?
Hello @bestpoppi and welcome to Mayo Connect. I see that you have tried Rytary.
As you are new to the Parkinson's discussion group, would you care to share about your history with PD? How long were you diagnosed and what meds were you taking prior to Rytary?
Were you given Rytary to help with off-times?