Is anyone using Rytary?

I appreciate you sharing that information about Rytary, @raebaby. How are you doing?

My husband of 58 years died with Parkinson's. He took Rytary and it stopped the "wearing off "he was experiencing. It was of great benefit. He got it for a $100 co-pay through a program his neurologist recommended.

I was diagnosed with Parkinson’s in 2017 starting with a trimmer in my right hand. I took the sentiment for about three years due to nausea he started me on Rytary 48.75–1 95 mg taking three pills four times a day in June 2023. I take other medicines and started having trouble. My parkinson doctor at Mayo Cut my dosage to about half 23mg?? One tablet at seven and one at 2 PM so far I have trimers in the evening along with stiffness in my feet in the morning. I’m in stage 1 of Parkinson.
My doctor’s Secretary helped me get Amneal patient assistant program in which the Rytary is sent to me by UPS once every three months Free the phone number for them is 877-764-9021. I hope this helps and answers your questions. Message me here if you have more question.
Good Luck

Hello @21amy,

I see that you had an appointment with your neurologist in June. Was the doctor able to help you with the nausea or the changes you were wanting to the Rytary dosage?

Hello @herbie87 and welcome to the PD support group on Mayo Connect. I'm glad to hear that the Rytary is helping with your off times.

When I was diagnosed with PD, I was having balance problems and foot dragging. What were your initial symptoms? How long ago were you diagnosed?

Hello @bestpoppi and welcome to Mayo Connect. I see that you have tried Rytary.

As you are new to the Parkinson's discussion group, would you care to share about your history with PD? How long were you diagnosed and what meds were you taking prior to Rytary?

Were you given Rytary to help with off-times?

I've been on Rytary for approximately 2 months and have seen no benefit at all. The cost is ridiculous, even with insurance!

I started taking Rytary about two months age two capsules, four times a day. I still have some of the tremors but the drug seems to cover all the off Times. Let me know how others either like it or not
thank you.

My adult son has had Parkinson’s for 8 years. He is now 50 years old. He began Rytary a few months ago and it has really helped him quite a bit.

I was on Mirapex for 11 years. After 11 years I changed from my first neurologist PA to Mayo. They immediately stopped the Mirapex and started me on Sinimet. I get very nauseated from Sinimet so switched to Rytary about 2 months ago. I feel like I have less off time, less nausea and feel less fatigued. I still have more nausea than I would like. I take Lodosyn and Domperidone with each dose of Rytary to help with the nausea. Does anyone have any suggestions for nausea. I am taking 3 capsules 3 times a day of the Rytary. I am seeing my neurologist at Mayo today and am hoping to either increase my dose to 4 capsule 3 times a day or 3 capsules 4 times a day. I live in Minnesota and there is some type of community program in Minneapolis that makes it affordable. I pay $15/month. Other wise it was over $1000 a month. I have to call this center when I have 1 week supply left and then they over night send it to me. Mayo set this up for me.