Is anyone using Rytary?

Posted by tllaes @tllaes, Aug 17, 2018

My doctor is suggesting I switch from a combination of Sinemet 25/100 and 50/200 to Rytary 36.25 mg-145 mg oral capsule,extended release. I would take 3 cap(s) 3 times a day. He feels my on time will increase. Is anyone taking Rytary? It is very expensive and not covered in my Rx Formulary at this time. If you are taking has it been an improvement? I have Parkinson for almost 7 years.

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tllaes | @tllaes | Aug 18, 2018

Thanks for your input. I am presently taking Sinemet CR (Carb/Levo ER Tab 50/200 so I don't know if that is the same as Stalevo. It is suppose to be long lasting but I didn't get the benefit so I have increased my dose of Carb/Levo 25/100 for the immediate impact I need. My Movement Disorder Neurologist believes I can get same if not better benefits from the Rytary and not have to take a dose so often. It is the expense I am wondering about so I need to work with my Rx Part D source to see what they will charge.

Teresa, Volunteer Mentor | @hopeful33250 | Aug 18, 2018

Hello @tllaes

On a personal note, while I've never tried Rytary, I have known members from a PD support group that I attend who did try it when it first came out and gave it rave reviews, but that is not a personal recommendation of course, only the evaluations of others.

I suppose you have already tried the long-lasting Sinemet? It goes by the name of Stalevo (the generic name is Carbidopa/Levodopa/Entac). It is the Entac (Entacapone) that makes the other ingredients last longer. You can also take the Entacapone as a single drug. I find that one Stalevo per day works quite well for me along with 2 Sinemets.

I have a friend from a PD support group, here in SE Michigan, who recently was in a clinical trial with a pump. It is a pump on the outside of the body and it gives her a steady stream of med. It has worked quite well for her, but as it was part of a clinical trial and I don't know if it will go on the market or not. You might do some research on it and see what you can find or ask your neurologist to check into it.

I hope that you are able to find a solution for your PD symptoms soon. Will you update me on how you are doing?

Teresa