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Is anyone using LDN (low dose naltrexone) for fibro pain?
I don't want to go on all the hard core meds like Cymbalta, people seem to have such bad side effects. I read about LDN being a promising option with far fewer side effects. Anyone on it?
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LDN research, trust and a lot of information
I am on it for PMR and it has helped me taper off prednisone from 15 mg to 1 mg.
I have a friend that has been on Naltrexone for 8 years for her MS. She has stayed right where she was when she started taking it.
I know this is not answering your specific question but I would give it a try. Find a doctor who is open to the idea and go for it. It has far less side effects than most drugs. I approached my doctor and he said let’s go for it.
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1 ReactionYes, it has helped me. I take it in the morning instead of the evening.
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1 ReactionI have been using it since 2021......I am like you and need to avid heavy drugs because I have MTHFR Factor double gene variation and one of its aspects is that my detox capabilities are very slow, so every drug I use I have to evaluate if it is worth it. I feel that it has helped very much.
It was difficult to qualify if it works because I didn't know how bad it could have been without it...however I just had knee surgery and had to stop LDN a week before and until I stopped pain meds after surgery because it blocks anesthesia and opioids' full effects. I started it again but it can take up to 4 months to become fully effective after stopping it. Surgery has made my fibro flare to excruciating proportions -I am almost always in bed with pain now - but I will let you know when it kicks in again. So be sure to ask your doctor for fibro to advise you on surgery aftermaths -because your surgeon probably has no clue , like mine.
I believe it is worth trying -but give it a good amount of time to integrate into your system. I think it is one of my best options...it is not widely promoted because it is inexpensive and so big pharma doesn't spend dollars advertising it. Go to NIH (Nat. institute of Health) website which is pretty technical, but you can read and see that it is very effective for many things.
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2 Reactions@cris023
I take it in the morning also -advised to because I take flexerill ( muscle relaxer at night) for post surgery fibro issues .But if I stop the flexerill I will go back to taking it at night because it does sedate me a little.
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1 Reaction@covidstinks2023 Yikes! That happened to me when my insurance switched compounding Pharmacies! The new specialty compounder made it with Microcrystalline Cellulose. BIG Mistake! I am sensitive to SO much! Unless they compound it with something inert like acidophilus, it makes me have symptoms like headaches and malaise as well. LDN
@gridly1 -Been taking LDN successfully since 2014. It' reduces my FM pain by 75% and has all but erased my Hashimoto's Thyroid titers! Before LDN, I was depressed all the time from the pain! BTW- there is a way to get it insurance covered.
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3 ReactionsLOVe, love, love my LDN!
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1 Reaction@gridly1
Hi Gridly,
Could you share the way that I could get it covered by insurance? Thank you, in advance!
Go on LDN Research Trust..it has prescriber list as well as a ton of info.....it has very few side effects -especially compared to other drugs....it takes anywhere from 4 to 12 weeks or so to kick in generally. I use a compounding pharmacy in my area and get a 3 month ( once daily ) supply for $70.00....there may be online pharmacies less expensive...