Is anyone using LDN (low dose naltrexone) for fibro pain?
I don't want to go on all the hard core meds like Cymbalta, people seem to have such bad side effects. I read about LDN being a promising option with far fewer side effects. Anyone on it?
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Naltrexone seems to be “harder” than cymbalta. When I looked it up, it says it’s similar to morphine. I’d seriously research any meds you’re thinking of taking, make sure they’re not habit forming.
I am on a high dose of Gabapentin 900 mg Three times daily. It has made a huge difference in my pain. Every step used to put a shock wave heel to hip. I has helped so much. It took a while to get up to that dose. It is an old drug and cheaper than some others. I would be careful myself with anything new. I let other people be the “Guinea pigs” of things used in a new way. I made a mistake during the pandemic and used emgality.
cjd72, I was given LDN for Thyroid and Fibromyalgia. It helped both, BUT, it gave me horrible headaches and I had to stop taking it. I am sensitive to almost everything.
It could very well help you. Blessings & Prayers....
Thank you. I'm on 900 gaba at night for restless leg syndrome and it does nothing for my pain. It helps me sleep though. I can't imagine being on 900 3x a day. So glad it helps you.
I'm trying it now. You go up very slowly. As of today, I'm at 4mg. I have noticed a slight improvement with my migraines within 30 minutes of taking it. Not much with yet with other pain or sleep. I was taking 700 Gaba, 3 Nucynta, and was on a Butrans 10 patch all of which didn't touch the pain.
Thank you yes it does help. When I was working I couldn’t even have 100 mg at night. We are all so different in what works. I hope you find something. There was a time when I got better due to exercise. It was very hard to get to that point horrible pain and sleeping after each time. I got to where I was exercising 3x per day then I got hit with intracranial hypertension and had to stop. I know they say exercise helps a lot. It is a very hard process, but worth it and something I hope to do again.
I was in the Naltrexone study at Stanford in 2012 I believe it was and I never heard of it being anything llike morphine. I will have to see what the latest reports say. In any case, out of the study I was the only one that it made worse. I do know a couple of ppl that are on it though. Best wishes
I am taking 4.5 mg of Naltrexone daily and think it's helping. I'm also taking several vitamin supplements and 5mg of Cyclobenzaprine every day so they might also contribute to me feeling better.
This doesn’t make sense to me as naltrexone is not an opioid, but is used in large doses to treat addiction. However, at small doses, it treats inflammation, pain and other conditions with efficacy. For more info check out the Low-dose Naltrexone (LDN) Research Trust website or FB group.
Correct, in low doses it's basically a different drug than the higher doses. A Doctoric Nurse Practitioner recommended it to me. It's starting to be used for different chronic pain and inflammation conditions. Side effects are supposed to be fairly safe.