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Is anyone taking TYMLOS losing their hair?
I’m on my second month of TYMLOS nightly injections and my hair is falling out. I don’t have very good hair to begin with and each time I washed it, a little was always in the drain strainer, but lately it’s four times as much coming out. My finger nails are strong and nice, but my hair is coming out at an alarming speed. I take all the vitamins and recommended supplements. I don’t use a brush or a tight comb. It’s curly and after I wash it, I usually use a conditioner and a wide tooth pick.
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@alidamc Same question about 10 clicks??? Also, although for me it doesn’t usually hurt, when occasionally it does I get nervous do for a few times I ice the injection area so it’s a little numb.
What helped me was three things: (1) don't force it. Some mornings, the spot you pick doesn't seem to be working and you've having trouble putting in the needle. Just pull it out and pick a different spot. (2) Try to keep the needle perpendicular to the skin, straight up and down. If it's at an angle, that can hurt. (3) I used to sit at the edge of the bed and hunch over a little bit to bunch up the fat at the abdomen.
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3 Reactions@njx58 That’s great advice. I only weigh 105 lbs. I don’t have much fat to stick the needle in. When my APRN showed me how to do it, she stuck it almost completely in the side of her belly. I do always stick the needle in perpendicular.
@tillyb someone else answered my question about 10 clicks. I was doing it wrong. I want it over as soon as possible so adding ice would just take longer.
I still don’t understand why I am the ONLY person in generations of my family to get severe osteoporosis.
@alidamc Remember that DEXA scans didn't even exist until 1987. Anyone you remember with slightly stooped shoulders had osteoporosis, even if they didn't know it.
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2 ReactionsGood point. But what does slightly stooped shoulders have to do with osteoporosis?
It usually doesn't stooped shoulders more often postural effect. Though men (over 65) usually fracture first in the hip, women (over 65) most commonly fracture in the vertebra and most commonly in the thoracic. These fracture are usually anterior wedge fractures which cause a forward bend in the torso.
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2 ReactionsI'm in my 6th week on Tymlos. The first few weeks I lost significantly more hair than usual, but now it's just a bit more than usual. Actually, if baldness would be the only price to pay for strong bones, I would be glad to do so!
@alidamc She’s talking about kyphosis or dowager’s hump which is closely related to osteoporosis. Often as your spine weakens from the osteoporosis, your posture is weakened and your shoulders/neck are misaligned. Your mother/grandmother may have been like that. Or…in my case, the women before me in my family were buxom…larger boned and heavy. My mom at 5’1” weighed 225-250. To carry around that kind of weight, she had strong bones. She never had any fractures.
Back to your hair loss (original concern for your post)…I would suggest trying to eat more protein. That is, protein in addition to calcium helps to build bone. Now that you’re taking Tymlos, your body is likely using as much calcium and protein you have available to build bone. In the process, your hair, skin and nails may be getting “robbed” of some of the protein they used to benefit from. Lots of foods are now available with extra protein (oatmeal, pasta, cereal, yogurt, etc.) or you can just get protein bars, drinks or protein powder that can be added to drinks/food.
@gently That’s interesting and although I don’t have stooped shoulders, my spine is what has suffered most plus a broken rib.