Is anyone taking TYMLOS losing their hair?

While hair loss isn't a "recognized" side effect of Tymlos. It is widely and easily recognized by the many who take the medication in dialogue like "pulling whole wigs out of the drain," and "wearing my hair now in the tiniest bun."
There is evidence in medical literature in the study of the effect on hair of hyperparathyroidism https://pubmed.ncbi.nlm.nih.gov/25721772/
I think it grows back after stopping the drug. Anyone notice?

@gently must be because the drug affects the parathyroid gland. It Is like pulling a whole wig out the drain. At least I know what’s causing it. I hope I’m not bald in 16 1/2 months. I still can’t completely count to 10 when doing the injection because there aren’t 10 clicks in the TYMLOS pen. I get to 9 sometimes and the 1st month it didn’t sting. Now it does and I dread injecting it every night afraid that I might react and pull it out. (I did one night.)

@alidamc Your comment about the clicks is confusing. What does the number of clicks in the pen have to do with counting to ten?

@alidamc
alidamc, full dose is 8 clicks. Can't get enough? eh.
We have hyperparathyroidism for four hours every day. Seems like our doctors would know.
But it sounds like you are doing really well (minus the hair).
I'm on the low dose Forteo injecting in the thigh is easier. Even when the needle resists the skin I never feel it. I have pulled the needle out thinking I must have forgotten to screw on on-- only once.
Tell me more.

@gently I am getting the full dose. It’s just something I dread doing every night.

alidamc, I was afraid was causing negative effect, but you're tolerating full dose. I hope it becomes routine and not interesting enough to be dreadful. I've been taking Forteo for so long that I don't give it much thought, forgetting altogether once in a while.

@alidamc What do you mean by "I still can’t completely count to 10 when doing the injection because there aren’t 10 clicks in the TYMLOS pen"? I don't understand that.

@njx58 I push the plunger in as slow as possible to try to count to 10, but when I push the plunger in, there isn’t enough clicks in the plunger to be able to count to 10. Am I supposed to just let it sit there after the medicine has gone in?
I am really hating this self injection. Wouldn’t be so bad if I can only do it in certain locations. Between a gallbladder scar from the 70’s and moles, it’s like, “WHERE SHOULD I POKE MYSELF TONIGHT?”

You have a misconception about how it works. Insert the needle. Push the button all the way down, immediately. The clicking sound when you press the button is meaningless, it's just the noise that it makes. You don't count to ten while you're pushing the button; you count to ten AFTER you've pressed the button. It's just to make sure the medication is in, i.e. you're not yanking the needle out too quickly.

The way you're doing it is torture! Trying to slowly press the button is going to make the needle move around and cause pain.

There is a video on their site to demonstrate.
https://www.tymlos.com/taking-tymlos/
Actually, even the video is misleading. Once you press the button, you can let go. It stays depressed. You don't have to keep squeezing it while the needle is in,

@njx58 oh. Well, I think all the medicine goes in. Push in. Count to ten.
Ok. Thanks. TY for the video. I watched one four times and was still confused.
Finding this forum was the best for information.
My prescribing ARPN should tell all her patients taking osteoporosis meds about this forum. She saw me once. Prescribed TYMLOS and I haven’t heard a thing from her. She gave me a demonstration but she just showed jabbing it in one place. I hope I never have to see her again.