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Is anyone taking Sivextro? Please share any side effects. Thank you.

Posted by janetannfaust @janetannfaust, 1 day ago

I was in Linezolid and stopped due to neuropathy in my toes and feet. Hoping it will go away after stopping the drug. Now my ID is working to get approval for Sivextro.

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Sue, Volunteer Mentor | @sueinmn | 1 day ago

@janetannfaust May I ask what infection they are planning to treat with Sivextro (Tedizolid)? I thought by now we had heard of every antibiotic ever used for NTM/MAC, but I do know that ID docs sometimes have to reach far for a solution when we cannot take the usual drugs.

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janetannfaust | @janetannfaust | 20 hours ago
In reply to @sueinmn "@janetannfaust May I ask what infection they are planning to treat with Sivextro (Tedizolid)? I thought..." + (show)
Profile picture for Sue, Volunteer Mentor @sueinmn

@janetannfaust May I ask what infection they are planning to treat with Sivextro (Tedizolid)? I thought by now we had heard of every antibiotic ever used for NTM/MAC, but I do know that ID docs sometimes have to reach far for a solution when we cannot take the usual drugs.

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sue1219
Yes, my diagnosis is M Abscessus. I started 3 antibiotics on August 21st and a week ago I noticed numb/tingling toes and feet. I was still taking Linezolid and that is a side effect. Went to neurologist on Monday and he confirmed diagnosis. ID assistant to stop Linezolid and he is trying to get other drugs approved to replace it, possibly Sivextro or Clofazimine(this was declined once already). I have other new stuff…..pre diabetes and anemia. More bloodwork today.
My other 2 antibiotics are Arikayce inhaled and Nuzyra (they replaced Amikacin & Imipenem). I messaged my ID about options he offered and declined Imipenem IV again, I felt terrible on that drug). I have an bronchoscopy scheduled for Dec 22nd because I can’t produce a sputum sample. I have BE too. I feel so much better not taking the Linezolid this week, except for my feet and toes.
Please share any thoughts.

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