Is anyone suffering with Anti MAG neuropathy?

Posted by framboise1 @framboise1, Aug 24 2:13pm

My husband was diagnosed 1/2 years ago and the disease is progressing. He was taking Gabapentin and has just started lyrica. In addition he will be starting IVIG treatments.
We would benefit from anyone s experience.

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Colleen Young, Connect Director | @colleenyoung | Aug 24 7:34pm

@framboise1, I'm tagging a few others who have experience with anti-MAG neuropathy like @jeffls @lloucass @savomic @con3 @as143 @robertstri @h37 and more. In the meantime, here a couple of related discussions:

- Anyone with Anti-Mag tried Rituximab treatment https://connect.mayoclinic.org/discussion/anyone-with-anti-mag-tried-rituximab-treatment/
- DADS-M Neuropathy with Anti-Mag Antibodies...anybody else? https://connect.mayoclinic.org/discussion/dads-m-neuropathy-with-anti-mag-antibodies-anybody-else/

Framboise, when will your husband start IVIG treatment?