Invasive lobular cancer and treatment choices

I have I’ll wither 2 dominion one quadrant. I had a lumpectomy and opted for radiation after doctor told me some people won’t stay on the pill long. I have so many other issue with pain that I really don’t want toke the hormone blocker. It’s a hard choice. But at least I Dodi 2 out of 3 things. I hope that’s enough. Good luck to you.

What precautions did you take?

My diagnosis was similar to yours with ILC: 74, Stage 1, Grade 2, Oncology score 6. I definitely wanted radiation but will not be taking any AI therapy. I understand that AI can only lower your chance of distant recurrence by half your score, so 3% instead of 6%. I feel that this is not beneficial enough to deal with all the side effects. You have to decide what is best for you.

I am a very active 72 and have been in very good health (other than osteoporosis) until the diagnose of stage III ICL end of last year. I have been taking Anastrozole for the last 10 months and am having increased joint stillness. I had a lumpectomy and am going through radiation therapy. CDK 4/5 inhibitors are on the table. I am not sure of the side effects and benefits for ILC cases like me.
Can you say how old you are are what was your diagnosis?

I had a DMX and with stage 4 metastatic BC, I'm on Verzenio & Tamoxifen. I'm also getting the Signaterra test every 4 months to monitor cellular activity.

I did have some joint stiffness from anastrazole but walking daily for about 20-30 minutes seem to really make a huge difference in the side effects. I made it 10 years on this drug. There is some things that I didn’t love and some I still don’t like, but I am still here.
Are you able to get up and walk a bit?

Yes, I do daily walking and lots of stretching. The stiffness is increasing, but still tolerable.
I am more concerned with taking CDK 4/6 inhibitors, such as palbociclib, abemaciclib, and ribociclib. They suggest adding that to anastrozole to mitigate recurrance.
Does anyone have experience with any of these drugs? I would really appreciate hearing about your experience and rationale for taking.

i was diagnosed with same , but lymph nodes were cancerous , quite a few, so had mastectomy and radiation , also chemo . chemo first , mastectomy and then 3 weeks radiation . now on esteogen blockers , as in my 60 , i take exemestane . all going well . little side effects . got my twin to get checked she had same but in situ , she had lump removed , no radiation no further treatment . so it really depends on your stage . i was glad to have mastectomy as large tumour . you get used to it very quickly , or i did . you might have other breast removed at later date .
but i think you need MRI to pick up any further bad cells . your in good position as got it early. all the best . keryn

i have anxiety dr put me on luvox, got bad stomach pain, i cut it down 2 50 2x a day and pain went away not o have bad anxiety, so feel happy no stomach pain but bad anxiety anyone help. had stage 1 b 6 years ago. had bmx radiation and 4 years of ai s. thank you