Intrathecal Pain Pump

Posted by duckski44 @duckski44, Jun 21 5:02pm

I’ve have an intrathecal pain pump for many years, just trying to connect with others that have this device to chat with people about effectiveness and drug therapies.

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Profile picture for bilt4pain @bilt4pain

@heisenberg34 I can answer that about my pump. My doctor was very conservative about dosing. In theory it’s supposed to be micro dosing. Took well over 2 years before I got to some relief which is to get my pain to a 4. And it got there for several years. Now I’m on flex dosing. I get 1.97ml. Continuous, with 4 daily 2.5ml. Per bolus. Right now, after 8 years I’m at 12.1ml. Per day. And it’s keeping me at a 6. When I was on 24 continuous, I had 2 bolus per 24 hour period. I’d use them both. But wasn’t enough. I think my body has acclimated to the morphine and it’s time for a new drug. Maybe hydromorphone or Dilaudid.

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@bilt4pain Do you mean 1.97 mg continuous?

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Profile picture for sreary74 @sreary74

I don’t know about that. I’ve tried two different brands of CBD gummies but had no effect.

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@sreary74 If CBD doesn't work, perhaps you might try TCH gummies. Of course there might be some side effects.

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Profile picture for heisenberg34 @heisenberg34

@bilt4pain Do you mean 1.97 mg continuous?

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@heisenberg34
Yes, the pump must never stop. I get 4, 2.5mg. Bolus’s/day with 1.97 mg. Continuous.

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I am approaching my 3rd pump in March. I've had great results; without it, my level of mobility would be nil.

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Have an appointment with pain management in a few days. Plan on asking about the implant. After a failed TKR my pain is off the charts. Hoping for some relief. Were your results immediate?

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